Vitamin b12

[golfingsue]

Does anyone take b12 who have ataxia & stiff persons syndrome

[PeteW]

Yes

[mikeblount]

Yes twice per month.

[collon]

I am taking b12 now. just wait and see its effect.

[ConfusedAtaxian]

I was told I needed B12 injections for life the year before getting Ataxia. A year later (Ataxia symptoms starting), I was told by another doctor to stop having B12 as the reading was so high, the system couldn’t monitor it. Don’t know what it’s like now, no-one’s bothered. Shall get it checked in the New Year. B12? Kind of leaves a sour taste........

[cocoa in reply to ConfusedAtaxian]

I have B12 injections privately and find that they help with my symptoms.

How often do you have injections? Perhaps you are not having enough.

[ConfusedAtaxian in reply to cocoa]

I don’t as I was overdosed. They were every 3 months before Ataxia. They didn’t make me feel different maybe more tired. Glad I don't have them now.

[vinoddayalji]

Have cerebral ataxia and take B12 supplement but can't see any improvement in my condition. Have been taking these for about a year

[auntiesally]

Was diagnosed with b12 deficiency , have still legs, now diagnosed with sca2, b12 doesnt make any difference ( dont think so?) I have b12 injections every 12 weeks, whats the point?