Hi I am Mum to 2 sons aged 28 and 24 they both have Friedreich's Ataxia. My eldest son is having trouble with muscle spasms, it started in his legs about 3 years ago and he couldn't stop his leg from lifting up or coming off the wheelchair footplate. He was prescribed 20mg Baclofen a day and this really helped. However over the last year he is having trouble sitting back in a chair as his legs and bottom muscles seem to spasm and consequently push him forward in the chair until he is almost laying, he has to be strapped down in order to stop this and even then you can see his muscles and legs fighting to go forward. This is so dangerous as there are times when he cannot be held down when dressing for example and he gets so worn out trying to heave himself back in the chair. In September the Baclofen was increased to 40 mg a day and has not helped in fact it could be getting worse!
Has anyone experienced anything like this, thank you