I'm 26, I was diagnosed SCA14 when I was 16. My disease has evolved over the years and my symptoms get worse.
Some years ago I experienced tremors in my whole body, they were annoying and made me even more uncomfortable going out and doing everyday stuff. I can remember they lasted for a week or so, they were only active at resting, specially standing still and doing work in the kitchen etc, they were also active while sitting. But when I layed down they stop.
The time passed on and I had them again for a short period. Now I experience tremors more frequent, more intense they even make my neck hurt and also last for a longer period.
Some days ago they came back, gradually worsening day by day. Now I'm getting afraid they are coming to stay.
Have any of you fellow people had similar experience? is there any treatment that is effective? I seriously feel like I cant live with such intense tremors, last time I had them I was sent to a neurologist 3 month later when my tremor dissapered and they couldn't do anything about them.
Edit: no reports exist that anyone related to my family with the same disease reported similar tremors. Which makes me think and hope they can be caused by anxiety or stress, any input on this thought would be highly apperciated as well