Cure Of Ataxia : How can one be able to strentghen... - Ataxia UK

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Cure Of Ataxia

17 Replies

How can one be able to strentghen nervous system and which exercise or medical step will be favourable to cure or overcome worse effects of Ataxia ?

17 Replies
Sharon_g profile image
Sharon_g

Hi urwah I can email you exercise 's my physio gave me if you want to give me your email.?

neta profile image
neta in reply toSharon_g

By all means email you exercises, I would also be most interested. Neat

Sharon_g profile image
Sharon_g in reply toneta

Email address?

neta profile image
neta in reply toSharon_g

nettygrosshorowitz@gmail.com

Sunny8088 profile image
Sunny8088 in reply toSharon_g

Hello please send me the exercise @ viju.joshi2000@gmail.com , Thanks for help

in reply toSharon_g

urwahgillani96@gmail.com

please email me I'll be Thank full to you :)

in reply toSharon_g

Urwahgillani96@gmail.com

wobblybee profile image
wobblybee

Hi😊 A good source of information are the Fact Sheets found on ataxia.org One of these gives several examples of exercise for people coping with ataxia. 😊xBeryl

Sharon_g profile image
Sharon_g in reply towobblybee

I got them as well. I am collecting I'll add them as well😁

AnneMenzies profile image
AnneMenzies

I can email you some of my exercises to do if that helps you 🤔

simsydney profile image
simsydney in reply toAnneMenzies

Him at I have as well?simsydney@yahoo.com

Sharon_g profile image
Sharon_g in reply toAnneMenzies

Can I also have a copy sharon.geiling@standard Bank. Co.za

neta profile image
neta in reply toAnneMenzies

I'd be curious to see your exercises too nettygrosshorowitz@gmail.com

lynn2hall profile image
lynn2hall in reply toAnneMenzies

lynn2hall@gmail.com

guyverthree profile image
guyverthree

I'm 32 and just diagnosed with ataxia, pure cerebella kind.

I've also got a 4 week old little girl so time is very precious. soi find that while cleaning my teeth I either do on one leg, or with my feet together and my eyes closed, it surprised me how much better the day is if I start of with that.

Also it's well know that weights can help with CNS firing, however get done advise before starting weights, I'm OK with them at the moment and I find the extra strength is a bonus.

The other thing that the neurologist asked me to do was get a Wii and play the balance games, it has helped but I wish the system faster as a whole as it's designed for children and family and not as a therapy tool...

Anyway just my view, whatever you do keep moving forward :)

Zigalig profile image
Zigalig

I went gluten free after I saw a kinesiologist and although I had the gluten blood tests they do with ataxia nothing showed up but it had an amazing effect and it has definitely slowed progression radically. I have a dog and walk 2 x daily, recently given up alcohol (apparently a no-no when you have ataxia but only just found out. Do physio and exercise daily. I definitely feel lots of my problems have been helped by developing muscle memory. It sucks the knowledge that I will have to do certain things most days for the rest of my life but it is much better to feel I am doing something to help myself. Good luck.

Iain_100 profile image
Iain_100 in reply toZigalig

I've heard nothing but good results from going gluten free. And, like you, my gluten blood tests were negative.

But this sounds like something to definitely try.

Thanks,

Iain

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