I was diagnosed with Idiopathic Late Onset Cerebellar Ataxia in March of this year. It is deemed, by the neurologist, to be mild, and my next appointment is at the local Ataxia UK clinic in Newcastle in mid July. On registering with Ataxia UK I was informed that I should inform the DVLA of my diagnosis, but on contacting the neurologist's secretary, I was told that this wasn't necessary. At the moment, I feel okay to drive, obviously if I didn't feel okay, I wouldn't do it. However, I certainly wouldn't want to drive a long distance, and I have noticed recently that, when cars appear at side roads, and stop, before joining the road I am on, I have this feeling that they are going to pull out, so I wonder if this is my peripheral vision being affected in some way. I am concerned that if I inform the DVLA then they will come down heavily on me, and whilst I realise that in time I may not be able to drive, at the moment, I feel relatively okay. Also, I wonder if declaring such a diagnosis, however mild it may be at the moment, will have a hugely detrimental affect on my insurance. I seem to have been given conflicting advice, the diagnosing neurologist says not to worry, while Ataxia UK says I should tell the DVLA. Any suggestions please?
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