My 99yr old mum has had ataxia symptoms probably as far back as I can remember. We never put a name to it. She didn't want to know.
We found out that some of her siblings had similar issues and did want to know. That's when we first heard of ataxia.
Over the years mum has deteriorated. She's 99. What can we expect?
More recently though I've started to think am I carrying the gene? We go through life just expecting that things will continue in their own sweet way BUT.
I'd like to know if anyone has any ideas about things that could be done to be in a better place to fight it, or at least have more strength to fight it for longer.
I've realised perhaps at the right time that although I may have a long life I may have to make the most of now rather than waiting until "next year".