I was born with congenital rubella .
Only just recently been diagnosed with rubella motor ataxia .
Last month only in April slight ataxia was mentioned .
My whole left side is affected plus my face and eye muscles has
gone droopy on the left side .
Even hold left eye lid up - when watch tv .
Leg (left one) and my feet are painfully affected .
Totter walk , bit wide steppy and have to always look downwards when I walk .
Am stunned at how tired I get after doing the simplest of things !
My limbs are tiny with extreme muscle wastage so it is harder to
use the little muscles I have left .
A real catch 22 thing is going on .
Just recently been in hospital and they are struggling trying to find
a rubella medical expert within the UK .
I live in the north west of UK and am aged 53 .
Started with the ataxia symptoms 2 years ago .
Didn't know - what was causing them either .
Am frustrated and confused how this can tire me out so easily ?
Would love to know and meet any others with history of rubella and ataxia ?