friends

[nicole24]

hi

i am 17 years old and have had cerebellar axatia from the age of 2.

i am looking to talk and make friends with people as i don't go out much and have very little confidence

[HarryB Administrator]

Hi Nicole24

Do you know what kind of CA you have?

HarryB

[gossy]

hi nicola hope you are having a nice day i know its hard not getting out im lucky i can still get out a little bit but not for long as i get tired quickly im on facebook if you want to add me linda gosnell look for sandcastle .

[nicole24 in reply to gossy]

Thankyou for writting back

[silkwood]

Nicole

I have got CA too.I know what you mean about going out.It is an effort but you have to consider yourself as a whole being and do what makes you happy .I like going out on my scooter.When someone admires the dog Isay very few words as I cannot speak very well.People soon get to know you. and yoou can just smile.It could make their day.

Don't isolate as many do with CA.That way can lead to depression and that is a worse handicap.Take care and keep trying to socialise.I know it is an effort but divide your day up into routines so that you always have something to look forward to.Friends are very important.They keep us going when we sometimes want to give up.

[nicole24 in reply to silkwood]

Thankyou for writting back

[Hidden]

Hi Nicole I appreciate you may not want too talk to an oldy like me but you are welcome to contact me bye email just think of me as an E dad just let me know and we can sort something out that goes for anyone else reading this but no chat I'm afraid my typing is far to slow

[nicole24 in reply to Hidden]

Thankyou for writting back

[macmike]

Hi Nicole, my name is Michel Beaudet, I'm 50, have FA and live in Quebec, Canada. Do you have Ataxia? Are you member of internaf? If not come join us, International Network of Ataxia Friends is a mailing list for ataxia patients and family/friends which serves as a support group and information exchange vehicle. There's also a website full of info at internaf.org

For info on how to subscribe, go see, internaf.org/network/servic...

We also have a facebook group -> on.fb.me/internaFB

And for Canadians with Hereditary Ataxia we have a Facebook group -> on.fb.me/chataxia

Et pour les Francophones avec une Ataxie Héréditaire Il y a un groupe sur Facebook (FAH) -> on.fb.me/fataxieH

[lindadoc]

Hi Nicole, where you from? my 15 yr old son has CA, i will message you and you can maybe contact him via Facebook

[nicole24 in reply to lindadoc]

Hi i am from Sheffield

[TimS]

Maybe have a look at virtualataxia.org.uk

The twice weekly chat sessions are a good way to make friends

[helen92]

Hiya, my names Helen, i'm 20 and have FA.. I'm quite happy to chat and make new friends too. I know what you mean about finding it difficult to motivate yourself and get out, but it honestly is the best way! feel free to message me

[samames]

Hey Nicole, I'm 21, add me on facebook at facebook.com/amesey or skype "samames.net" (without the quotes) ... I have an unclear diagnosis... was also diagnosed aged 2.

[Hidden]

Hi Nicole 24!

Hope we can be of help and support to you. If you want to chat I'd be pleased to do so. What sort of things are you interested in and enjoy doing? Tell us and you can be certain someone will have an interest that you can chat about with them. Sometimes it's small steps that take you somewhere on a friendship journey you wouldn't think could come about. I've met folk on this site and on the Living with Ataxia site and we've become good friends - and through our common interests found we're corresponding regularly and looking out for each other and its a really good way to find new contacts who really do know and understand what it's like to be ataxic.

Hope this helps.