Diagnosed with SCA type 10 in December 2022.
Male age 58.
Midlands, UK.
Diagnosed with SCA type 10 in December 2022.
Male age 58.
Midlands, UK.
🙂 I haven’t tried this supplement myself.. it’s very unlikely to have any beneficial effect on ataxia.
My sister got me some as she heard they were beneficial, but I’m waiting to speak to my neurologist before I start taking them.
@l was diagnosed with ataxia in 2006. I tried a couple of months course 2 or 3 years ago. Unfortunately they had no effect whatsoever and were expensive too. With hindsight I think my neurologist would have mentioned them if she thought they were worth trying.
it works. I am on a couple things i have added to my arsenal and my progression have stopped. I was in the medical field so I know how to do research. This definitely works overtime. It is not instant results but it works.
it may seem as if it is not working but when taking supplements it is good to journal your symptoms. You also need to go low and slow so the body start to heal. It is neuro protective. So it prevents progression of symptoms, but once you stop the protection is gone and the disease progresses. I have actually stopped logging into this group because it is depressing to hear that people will advise you to not try things because they are scared. I don’t want to be mean but this will be my last login.
On another note there is no cure . This is one of the oldest metabolic neuro dégénérative disease older than cancer, diabetes, aids, Ms, Parkinson’s , etc and no one has found a cure. That is just ridiculous to me.
The medical system is also a joke. What they do is feed into big pharma$$$. The are only there to maintain disease not cure or help you get rid of disease. I recently went to a doctor - neurologist on the suggestion of my other neurologist to explain to me my symptoms of hypotensive blood pressure and the incredible anxiety I was having. Do you know he wanted to prescribe me heart medication. He has no idea why I was hypotensive but wanted to give me heart medication, with the side effects on my liver and kidneys. The one good thing is my blood test results, with that in hand I was able to fix a number of issues and now my outlook on life is better.
Hello!
What a positive response- thank you.
I've been trying to get my partner to be open-minded and try things, which fortunately he's bought into with Lion's Mane.
He's only 58 anx still working f/t, so I want him to have the best quality of life that he can.
Thank you ever so much for taking the time to write these encouraging words.
Sarah
Hi, I have scar10 does your partner use any other forms of medication?
Hi there! You're only the second person we've ever come across with SCA 10!
No....he was only diagnosed a week before Christmas 2022, so it's all very new.
He has acid reflux- possibly as a result of ataxia or maybe stress related- and is taking medication for that. Otherwise, nothing.
How about you? When were you diagnosed? What are your symptoms? Are you taking any medication?
Sarah
Hi Sarah , My husband was diagnosed Cerebellar Atrophy at age 59. He is now 74 . Last year he had the results from gene testing and found gene ANO10 was to blame. That is also known as SCAR10. When we went to see our neurologist this year he said just use the term ANO10 as SCAR10 can be confusing with SCA10 . I am still trying to read up on this to understand more.
His symptoms are usual affecting mobility and speech. He is not taking any medication. Earlier this year he had urin infection and was in hospital and now retaining urin so has long term catheter. The neurologist said this condition is not ANO10 related.
Kuldip
Hi, I have had scar10 for some 15 years now but not diagnosed properly for about 5, my neurologist has given me coenzyme Q10 for fatique but this was really off my own back I was taking this anyway, my symptoms are balance, coordination & eyesight
Tara
Hi Tara,
I'll mention the Q10 to my partner, as fatigue is a big problem.
Might be worth starting it after having seen if Lion's Mane makes a difference.
Thank you!
Sarah
Hi and thanks to posting. Could you please share the link where to buy them?are you using other su]lement with it?
Hi again,
We just got them on Amazon- no particular brand. No, he's not taking any other supplements.
We're due to see the consultant at end of October, so will report to him if we notice any differences.
Treats every known disease
BUT Mushroom species are poisonous to health. First line of defence is your liver and kidneys that get shattered by poisons
There have been documented cases of people experiencing difficulty breathing or skin rashes after exposure to lion’s mane mushrooms,