Has anyone tried Lions Mane 1500mg capsules? They are apparently good for neurological problems. Thanks!

[SJP239]

Diagnosed with SCA type 10 in December 2022.

Male age 58.

Midlands, UK.

[wobblybee]

🙂 I haven’t tried this supplement myself.. it’s very unlikely to have any beneficial effect on ataxia.

[SJP239 in reply to wobblybee]

Thank you for your reply. I know you're very active on the forum and have tried different things, so I appreciate your answer. Thanks!

[Millwallben]

My sister got me some as she heard they were beneficial, but I’m waiting to speak to my neurologist before I start taking them.

[SJP239 in reply to Millwallben]

Ah right, good idea. We're waiting to see the neurologist at the end of October, so could do the same thing.

Thank you for replying!

[Tallguy101]

@l was diagnosed with ataxia in 2006. I tried a couple of months course 2 or 3 years ago. Unfortunately they had no effect whatsoever and were expensive too. With hindsight I think my neurologist would have mentioned them if she thought they were worth trying.

[SJP239 in reply to Tallguy101]

Thank you for replying. Maybe they're not going to be the cure all that we perhaps hoped for!

We're seeing the neurologist at the end of October, so we could mention it at the appointment and see what he says.

Thank you!

[abgw2330]

it works. I am on a couple things i have added to my arsenal and my progression have stopped. I was in the medical field so I know how to do research. This definitely works overtime. It is not instant results but it works.

it may seem as if it is not working but when taking supplements it is good to journal your symptoms. You also need to go low and slow so the body start to heal. It is neuro protective. So it prevents progression of symptoms, but once you stop the protection is gone and the disease progresses. I have actually stopped logging into this group because it is depressing to hear that people will advise you to not try things because they are scared. I don’t want to be mean but this will be my last login.

On another note there is no cure . This is one of the oldest metabolic neuro dégénérative disease older than cancer, diabetes, aids, Ms, Parkinson’s , etc and no one has found a cure. That is just ridiculous to me.

The medical system is also a joke. What they do is feed into big pharma$$$. The are only there to maintain disease not cure or help you get rid of disease. I recently went to a doctor - neurologist on the suggestion of my other neurologist to explain to me my symptoms of hypotensive blood pressure and the incredible anxiety I was having. Do you know he wanted to prescribe me heart medication. He has no idea why I was hypotensive but wanted to give me heart medication, with the side effects on my liver and kidneys. The one good thing is my blood test results, with that in hand I was able to fix a number of issues and now my outlook on life is better.

[SJP239 in reply to abgw2330]

Hello!

What a positive response- thank you.

I've been trying to get my partner to be open-minded and try things, which fortunately he's bought into with Lion's Mane.

He's only 58 anx still working f/t, so I want him to have the best quality of life that he can.

Thank you ever so much for taking the time to write these encouraging words.

Sarah

[Tazmurray in reply to SJP239]

Hi, I have scar10 does your partner use any other forms of medication?

[SJP239 in reply to Tazmurray]

Hi there! You're only the second person we've ever come across with SCA 10!

No....he was only diagnosed a week before Christmas 2022, so it's all very new.

He has acid reflux- possibly as a result of ataxia or maybe stress related- and is taking medication for that. Otherwise, nothing.

How about you? When were you diagnosed? What are your symptoms? Are you taking any medication?

Sarah

[Beeraji in reply to SJP239]

Hi Sarah , My husband was diagnosed Cerebellar Atrophy at age 59. He is now 74 . Last year he had the results from gene testing and found gene ANO10 was to blame. That is also known as SCAR10. When we went to see our neurologist this year he said just use the term ANO10 as SCAR10 can be confusing with SCA10 . I am still trying to read up on this to understand more.

His symptoms are usual affecting mobility and speech. He is not taking any medication. Earlier this year he had urin infection and was in hospital and now retaining urin so has long term catheter. The neurologist said this condition is not ANO10 related.

Kuldip

[SJP239 in reply to Beeraji]

Hi Kuldip,

Thank you for all that information...I shall pass that onto my partner.

It all sounds so complicated....I reckon I need to do yet more reading.

Thanks for the nudge!

Sarah

[Tazmurray in reply to SJP239]

Hi, I have had scar10 for some 15 years now but not diagnosed properly for about 5, my neurologist has given me coenzyme Q10 for fatique but this was really off my own back I was taking this anyway, my symptoms are balance, coordination & eyesight

Tara

[SJP239 in reply to Tazmurray]

Hi Tara,

I'll mention the Q10 to my partner, as fatigue is a big problem.

Might be worth starting it after having seen if Lion's Mane makes a difference.

Thank you!

Sarah

[Tazmurray in reply to SJP239]

👍 yes let us know how you get on..

[SJP239 in reply to Tazmurray]

Yep...will do.

[simsydney in reply to abgw2330]

Hi and thanks to posting. Could you please share the link where to buy them?are you using other su]lement with it?

[SJP239 in reply to simsydney]

Hi again,

We just got them on Amazon- no particular brand. No, he's not taking any other supplements.

We're due to see the consultant at end of October, so will report to him if we notice any differences.

[simsydney in reply to SJP239]

1500mg/day?

[SJP239 in reply to simsydney]

Yes...that's it. He's just started it.

[simsydney in reply to SJP239]

thank you

[Driven1]

Treats every known disease

BUT Mushroom species are poisonous to health. First line of defence is your liver and kidneys that get shattered by poisons

There have been documented cases of people experiencing difficulty breathing or skin rashes after exposure to lion’s mane mushrooms, 

[SJP239 in reply to Driven1]

Ah...thank you for the warning!