Ataxia Diet

[paul456]

Hello all

Hoping your well and enjoying the weather.

Has anybody tried the diet recommended by Ataxia uk that may help with certain symptoms in some people.

If you have has it helped any?

My good lady wife has got me on it and I’m starving all day long, only been on it two weeks and already look like a skeleton 💀

Thanks for any advice 😊

[HarryB Administrator]

Dear Paul

Thanks for your post

I am not aware of a particular diet for people with ataxia recommended by Ataxia UK, other than a gluten free diet for people with gluten ataxia. Is this the diet you are referring to?

Best wishes

Harriet

[paul456]

morning HarryB

Apologies it’s not come from Ataxia UK its from National Ataxia Foundation in USA.

It can be found under

ataxia.org diet (I hope)

[HarryB Administrator in reply to paul456]

Thanks Paul.

Harriet

[Guardsman68]

Hi Paul apart from the strict diet I hope you are well. The long haired general (wife) has past comment that I should consider a change in diet but I’m holding out at moment as I anticipate I will be but on a strict gluten free diet on my next visit to Sheffield as TG6 antibodies were found. I like a biscuit with my brew so I’m gonna stick with that for now. But could do with shedding a few pounds 🤨 take care friend

NO SURRENDER

Lee

[paul456 in reply to Guardsman68]

Hi Lee

This diet is a complete change for me so I suppose it will take some getting used to but if it makes a difference for the better it will be worth it. See what is advised on your next appointment and of course what the long haired general is happy with 😊.

All my close family turned into Neurologists 3 weeks after I was diagnosed 🥴

You take care my friend.

[Guardsman68 in reply to paul456]

Hi Paul on the discovery of the TG6 antibodies I was informed not to change my diet ☺️until further blood tests and MRI spectroscopy was done at moment I’m using this as a defense tactic against the general but i fear I will have no choice but to change this tactic. I anticipate a gluten free diet will be advised and I will give that my best because joking aside I’m in my chin strap with some of the new symptoms.

Keep at the diet friend if it’s going to help we need all we can get and let’s face it the wives know what is best for us.

NO SURRENDER

Lee

[slipsandtrips in reply to paul456]

Hello Paul456,Hope your are well,

I am interested in a diet to go and did not realise that there was one for Ataxia conditions. I am egar to try this, how can I know more please?

Thanks

slipsandtrips

[paul456 in reply to slipsandtrips]

Hi Slips

This diet was found from the National Ataxia Foundation (USA) it’s a mixture of high vibre and vitamins. I’ve had some success with more energy and feeling better in myself although I don’t follow it to the letter I was always hungry 😊

It can be found by typing in ataxia. org diet

Good luck my friend.

[slipsandtrips in reply to paul456]

Morning paul456.Thank you for your reply, I w ill looking into it.

Kind regards

Slipstripsndfalls

[wobblybee]

Hi Paul 🙂 I’m guessing you refer to..

A SIMPLE CARBOHYDRATES-RESTRICTED, HIGH FIBRE DIET

I ‘loosely’ follow similar..but haven’t had the same amazing results as yourself 😉

[paul456 in reply to wobblybee]

Hi W Bee

I’m a bit concerned that you won’t be able to recognise me on our top secret Saturday nights out so I’ll have my yellow suit green tie and red shoes on, it’s called the traffic light look 👍🏻😂

Take care my friend x

[wobblybee]

😂 I’m speechless