Advice Please : I was diagnosed with ataxia sca... - Ataxia UK

Ataxia UK

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Advice Please

Lilielost profile image
7 Replies

I was diagnosed with ataxia sca6 in 2018, after 5yrs of problems. Speech in 2015 became difficult and it’s been downhill since. Now I feel that I’ve constant motion sickness, does anyone else have the same problem? Any tips on how to manage gratefully received.

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Lilielost profile image
Lilielost
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7 Replies
paul456 profile image
paul456

Hi Lilie

I was diagnosed with sca6 in 2019. I’m not sure if there’s one thing that can help but have a look at recommended diet and vitamins for people with ataxia from ataxia uk some of it will help with dizziness.

Take care my friend.

Lilielost profile image
Lilielost in reply to paul456

Thank you for your reply. I also have type 1 diabetes and an ileostomy due to colon cancer 7yrs ago, so my diet is challenging.

Jingle1967 profile image
Jingle1967

I was diagnosed with ideopathic cerebellar Ataxia in February 2020. I feel dizzy all the time. There was a time when I felt nauseous, so I used those elasticated bands that go on your wrists. It seems to have passed now though. Touch wood!

Lilielost profile image
Lilielost in reply to Jingle1967

Thanks for the suggestion, will give it a try.

wobblybee profile image
wobblybee

I have Vestibular problems myself but so far not motion sickness.

🤔 It’s possible you could benefit from Vestibular Therapy…ask your GP for a referral

vestibular.co.uk/vestibular...

Lilielost profile image
Lilielost in reply to wobblybee

Thank you for replying.

Ginger1 profile image
Ginger1

I don't have motion sickness but do eat reasonably healthily and take a few vitamins. I do know that there's no 'one size fits all ' cause we're all different but you may be lacking in certain vitamins due to your ataxia & other ailments too? I do know that vitamin B12 is a biggie & coenzyme Q10 can also be, so as Paul456 said, it might be worth looking into. Speak to your GP & neurologist & other specialists that you may see, to see if they can advise.

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