Ataxia SCA1

[Mirabella113]

Hi, just have a question-does anybody have the same problem. I was diagnosed with SCA1 in 2011, no symptoms yet. From around 2 years I started to have really bad pains in my lower abs, coming up the stomach, ribs and middle chest. The pain is like needless and sharp. I have fainted a few times because of that. Now from a few months I have started to feel nauseous, very weak and lightheaded. It's coming from nowhere and just like that. Sometimes I can't even take my son to nursery because I have to lay down. I'm guessing that it's something to do with hormones maybe Ataxia is starting to develop?

[paddym67]

Yes. I have it. I am 55 and balance and speech are the most obvious issues. Occasionally swolling issue

[Mirabella113 in reply to paddym67]

The same symptoms? Can I ask if there's something to help?

[wobblybee]

🤔 What does your Neurologist say about these symptoms

[Mirabella113 in reply to wobblybee]

I don't have one, I didn't had any symptoms. Now I'm waiting for an appointment. It's been 2 months.

[wobblybee]

🙂..Join NAF next Thursday, May 4th at 12 pm CDT for our webinar series on SCA1. During this webinar, clinical expert Dr. Sharan Srinivasan will give us insight into the causes and symptoms of the disease, the typical diagnostic journey for those affected, & what to expect for clinical care. You may find this webinar helpful if you or a loved one has SCA1.

TO REGISTER..

SEE MY PREVIOUS POST FOR THE LINK

🙂 And if you’re on Facebook

Look for ‘SCA1 Ataxia Group’

[sblake8]

I doubt it’s SCA - I’m guessing more hormone related. I have type 1 and my family and that usually not a symptom