Nilotinib/Tasigna : Some people mentioned using... - Ataxia UK

Ataxia UK

4,061 members4,621 posts

Nilotinib/Tasigna

mpagganwala profile image
1 Reply

Some people mentioned using the Nilotinib/Tasigna off label. Can anyone help me figure out how and where to get it cheap and safe. I like to try it. I heard it’s helpful for SCA patients. You can pm if you want to stay anonymous. Please help.

Written by
mpagganwala profile image
mpagganwala
To view profiles and participate in discussions please or .
1 Reply
wobblybee profile image
wobblybee

There has been a study done of Nilotinib Tasigna re Ataxia on clinicaltrials.gov....the study is complete but no results were published.

Not what you're looking for?

You may also like...

Improving diagnosis, and management of Gluten Ataxia.

🙂People in the UK Improving diagnosis and management of Gluten ataxia Ataxia UK, Coeliac UK,...

Mollii Suit…..giving muscle stimulation

What is a Molli Suit A comfortable jacket and trousers with built-in electro-stimulation for...

missing life before ataxia

Hi, I really miss the old me before I had ataxia. Ataxia took so much away from me and no one...

vestibular dysfunction

Hello, I was diagnosed 7 years ago with SCA unknown cause, following blood tests. Does anyone else...

Ataxia Special Advice

I was diagnosed with progressive cerebellar ataxia in January. So far I’ve had an Mri, dat scan,...