Severe balance problems

[Arlo20]

Hi i have ceĺlebèler ataxia péripheral neuropathy my health hàs gone downhiĺl rapidly in the last 9 months i have to use a wheelchair all the time now while getting dressed or undressed i faĺl on my bed mainly to the left side if i try getting on the floor i fall over,i cant stand without holding onto something solid.it seems every month or so this awful illness throws something else at me im quite a positive person but staŕting to wonder what else to expect.Does anyone get meds for it i get Gabapentine thañks in advance Roy

[Bev2579]

Hello Roy , I have the same condition, diagnosed 3 years ago. I am not sure if you can but you must keep active. Keeping active keeps your nerve stimulated and it keeps your leg muscles strong. I am determined to keep my mobility on 2 legs, so I do everything I can to keep me on my feet. I bike 5 xa week, treadmill x3. Yoga stretches x7 a week and pilates x4. You should start with yoga mobility on a mat sitting. Hope this helps . Or get some ankle weights and do some seated leg lifts.

[Arlo20 in reply to Bev2579]

Hi Bev thanks for reply up until a few months ago i exercised a lot,my balance is so bad i can't stand without a solid structure to hold onto so wheel chair bound now even on my hands and knees i tip over.I have an appointment at QCUH on 22nd april hoping they can shed some light on it .

[cocoa in reply to Arlo20]

Arlo20 Hopefully they can offer some neuro physio for you. I wish you well and hope you get some help.

[Arlo20 in reply to cocoa]

Thank you.

[KERRINGTON]

Hi, I take vitamin B 1 for balance and its helps.

[Arlo20 in reply to KERRINGTON]

Thank you.