need some treatment: i am a patient suffering from... - Ataxia UK

Ataxia UK

4,051 members4,597 posts

need some treatment

4ever2gether profile image
3 Replies

i am a patient suffering from SCA3 for six years from asia,so i dont have a convenient treatment on this,recently,i find myself cannot focus to program(my job is a programer),especially my eyes,i cannot stare at something especially the computer for a very long time,can you give me a treatment on this,thanks very much

Written by
4ever2gether profile image
4ever2gether
To view profiles and participate in discussions please or .
3 Replies
wobblybee profile image
wobblybee

Hi 🙂 I found the results of a study re SCA3 Eye Problems. The information is lengthy, and in medical terms, but it did give this conclusion...

In conclusion, our study confirmed the positive association between abnormal eye movements and the severity of ataxia in SCA3 patients, which emphasize the importance of clinical assessment of abnormal eye movements in patients with SCA3.

I’m sorry no specific treatment was mentioned, but it could worth seeking advice from a NeuroOpthamologist.

Copied from bmcneurol.biomedcentral.com

Search for ‘SCA3 Eye Problems’

4ever2gether profile image
4ever2gether in reply to wobblybee

Thanks very much

klazien profile image
klazien

If you can find a neuro-opthalmologist it is probably the best but it it might be hard to find one. I used to see one at the time I used to see Dr. Giunti at the Ataxia centre in London. I live in Wales so the drive was very long. Now I am being monitored by a neurologist in Cardiff to monitor my ataxia and the department of the neuro- ophthalmologist at the neurology hospital in London has stopped altogether.

But as there is no cure for anything relating to ataxia it does not matter anyway.

You may also like...

Recently diagnosed, need some help !

just clumsy or something like that, it wasnt disturbing). Since January 2023, I was in a very dark...

I am in need of some advice on ATAXIA... Please

Ataxia Treatment Satisfaction

better understand patients’ and caregivers’ experiences and satisfaction with treatment. The survey...

Treatment for Huntingdon 's

There has been a breakthrough in the treatment of Huntingdon ' s. They think it could work for other

Sheffield and autoimmune treatment

Professor Hadjivassiliou at Sheffield. And receiving treatment and medication for autoimmunity. I...