Ataxia in the Family : They now think my dad my of... - Ataxia UK

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Ataxia in the Family

KiwiBob profile image
3 Replies

They now think my dad my of had Ataxia. He has passed away so can’t be tested. His Brother my uncle (76 years old) is Waiting to be tested for Ataxia and he thinks his sisters my Aunties (there in there nineties) my have Ataxia too.

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KiwiBob profile image
KiwiBob
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Veteran250 profile image
Veteran250

Good morning Bob, it is generally said that when someone in their autumn years gets a debilitating illness, people say ah well, they had a good life, but to my way of thinking, we want to live as long as possible...... hoping the family tests are all negative.

Try to have a good day Bob. 😀

Litty profile image
Litty

It is very hard for everyone if you do know and they offer testing x

KiwiBob profile image
KiwiBob in reply toLitty

I think it’s best for my kids (25 to 33 years old) to know now than later. At least they would get a change to do all the things they would like to do in life before the Ataxia hits them.

I did not get that choice. This was taken from me at 46 years of age at the peak of my fitness because of Ataxia.

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