Sleep: Hi just curious about how much sleep people... - Ataxia UK

Ataxia UK

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Sleep

SamGH profile image
12 Replies

Hi just curious about how much sleep people need.

I have CA and need about 10 hours a night. Currently I am only getting around 8 thanks to my wife's alarm and stomping about in the morning.

I always have naps during the day.

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SamGH profile image
SamGH
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12 Replies
springlove profile image
springlove

Hi SamGH,

I need much more... usually about 11 hours. After I've done a few things in the morning like preparing dinner for mid day, I start getting tired. I think Betahistine also makes me tired which I take 3 times a day. After dinner I have to get 2 to 2-1/2 hours sleep. I make sure I get up then although don't really want to (am still tired). If I didn't then I'd have trouble trying to settle down at night.

Jean

Veteran250 profile image
Veteran250 in reply to springlove

It is said as you get older you need less sleep, I go to bed at 10pm, read for about one hour or so, settle down to sleep but I’m awake by about 4am..... try to sleep after that but have fits of dozing on and off, generally get up about 8-30 or so.... I dont smoke or drink and Im 74.

Miche123 profile image
Miche123 in reply to springlove

What do you take betahistine for I was on it they thought I had inner ear issues but the specialist didn't think that was the right diagnosis as I didn't have dizziness

springlove profile image
springlove in reply to Miche123

I take Betahistine for vertigo. A few times I skipped the morning one because it made me feel sick and It felt better not taking that one. As time went by though I could tell I wasn't as steady so got back to the routine.

neta profile image
neta

Dear SAMGH,

I sleep like a rock about from11 to 730 am, with a giant nap at one thirty, but I wake up from these sleeps feeling anxious and terrible. .Usually my bladder wakes me.xxxNeta

anihol profile image
anihol

For me I need 10 to 12 hours at night and around 2 to 3 hours in the afternoon

pollybanana profile image
pollybanana

I need more sleep than I get, I always seem tired. I get about 3 hours some nights. Depends on how restless my legs are or how bad the pins and needles. I just can't sleep in the day, it makes me feel worse and I think if I can keep awake I may just crash out when I go to bed.

SamGH profile image
SamGH in reply to pollybanana

Sounds rubbish

pollybanana profile image
pollybanana in reply to SamGH

It is.

Litty profile image
Litty

I need at least 8 hours but I need the loo about 5am. Better with sleep in afternoon x

FFNick profile image
FFNick

Baclofen fixes restless legs. Power Napping during the day does not affect my ability to sleep right through my alarm. Need over 8 hours possibly due to worker harder for everything we do. Try to get up at same time each day but this requires altering bed time.

By accident bedroom is setup for sleeping. No TV, warm, blackout curtains (as council illuminate my room), no computers only bedside clock and books. Try not to eat nor drink hours before sleeping. Double glazing cuts out any noise. Can not hear pre-dawn refuse collection.

If bladder wakes me, have pee bottle from sea kayaking days.

GPs are reluctant to prescribe sleeping pills, as habit forming and can become ineffective with prolonged use.

Woodturnerman profile image
Woodturnerman

Hi.

I have suffered from constant tiredness for a good few years now. I have only recently realised that this is part of this horrid condition. If I feel tired I sleep for a couple of hours, sometimes more. I sometimes stay in bed most of the day....

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