writing

[claire01]

so frustrated this time of year is so challenging with so many tasks...writing cards and wrapping presents..do other people find this hard ???

[Art69]

Hi Claire

It is so frustrating,all year round trying to write I have just gave up trying to make my writing neat

Thanks

[claire01 in reply to Art69]

Me too...its like spider writing 😀

[Art69 in reply to claire01]

Mine is more like kids writing 😡😂

[JillJ]

Yes, I write the bare minimum in cards now. I am fine on a computer keyboard at the minute, but find writing really quite an effort now, which is so sad, as it's something I used to like doing.

[wobblybee]

🙂 Claire, I would imagine there can’t be many of us who haven’t felt exactly the same as you. I used to particularly enjoy the challenge of wrapping unusually shaped presents 🙂 Now, I appreciate the practicality of using beautiful gift boxes and gift bags 🙂 My writing has deteriorated but the warm sentiments remain the same 🙂 Merry Christmas 🎄😊 xBeryl

[Staggy1 in reply to wobblybee]

Same here! That's what I do now... X

[cocoa]

I agree Claire but there are ways round things. I am much happier using the keyboard but refuse to do the "round robin" letter so many people choose to do. My writing is unpredictable but better to pace yourself and do a little bit at a time.

As for presents ... going to the shops is a nightmare, so I have had to cut down presents at Christmas. I will still do birthdays because they are spread through the year.

I watched my mother cope with ataxia through the years and it is better to do what you are happy doing.

Happy Christmas

[Hidden]

Yes, I hardly have anything to do as my parents help me out a lot and I don't have kids/wife etc but even I have felt overwhelmed with cards and stuff. I haven't sent hardly any out and feel guilty when I receive cards, or presents!

[claire01]

yeah know the feeling...GUILTY...just feeling abit sorru for myself 😟

[AtomicBubba]

I’m thankful for this website to know I’m not alone, and things like writing cards especially, others find that difficult too! I was always known for putting something nice and sentimental in a card but now I can just about do the bare minimum 😢 but my family and friends understand. It still really sucks! I just have to vocalise my feelings instead 😊

[Jakeyboi77]

People that I know, know my writing isn’t great, at least now I know why, I always make the effort to write cards, my friends and family know I am not great at it x

[SamGH]

I'm the same. The wife wraps every thing and writes all cards. ChrisTomas always makes me feel useless.

[claire01 in reply to SamGH]

I have felt useless this year to😓

[neta]

Writing...ah.I miss it too, But my main problem now is vision. My handwriting is very childlike. Some therapist told me to write ten minutes per day to keep somewhat.xxxN

[violasrbest]

My writing was never neat, not even as a child. I was kept in and asked to rewrite something at primary school. I took my time (my mum was a teacher at the school), but the second time was worse than the first time. After that the Head gave up.

My writing is now illegible, even to me, and even typing is full of mistakes, I have to correct 75% of words. I haven't written a single card for several years, and my present wrapping is bad with a rectangle, abysmal with anything else.

BUT I do not feel useless. I can do some other things, even if I can't write cards or wrap presents.

Happy Christmas to all.

[Veteran250 in reply to violasrbest]

I have had hand tremors since I was a small boy, I could never do joined up writing because my hands would shake, I have always used block capitals when writing throughout my life......I even used capitals whilst serving in the RAF.

Now my capitals writing is illegible but give me a keypad and I’m happy.

[Litty]

Nightmare!

Presents - Start v early, buy online. Ribbon hides multitude sins. Gift bags and tissue paper.

Cards - I use a stamp for inside in a blank card. Stickers for label addresses x

[sylviagreenhalgh]

luckily my carer is excellent at wrapping parcels as I can no longer do it and writing is hard so I type a newsletter thing I can just modify as I need to for individuals and of course you can use email. just accept the way you are but it is difficult. have my licence back so went to the garage to fill up and could not use the petrol hose because of my hands but someone gave me a hand. I hadnt expected that to be a problem but the assistant said they can always help me in future.just carry on ! xSylvia

[FFNick]

My writing is illegible

even to me.

Do not do presents as parcels and wrapping too challenging.

Use fuel pump with payment at the pump. Roof rails on my vehicle necessary. Cordless recharging of electric cars being developed. (Qualcomm?)

[4Heavenly]

Hi Clair I feel so bad for you. How are you lately? Im so sorry for your pain. It just has to awful living with it. Please know I sympathize with you for sure. Do you use a scooter to get around? Do you live in a big city or a small town? Are you able to still drive?

I have a new scooter that was donated to me from a friend. Her Father bought a brand new scooter and passed away 3 months after. Her Mother told her daughter (my friend) to give it to me. I was so thankful for her generosity. I go by myself riding around my small town talking with who ever. It is a life saver as sitting around gets me really down.

You know Clair winter is so long for me is it possible we can write to see how each of us are doing? I try not talking a whole lot of how I feel at times as I think it is hard for my relatives and friends.

Just understand it won't be a lot of writing as my fingers are numb so typing is awful.

Let me know your thoughts Claire maybe we can talk over our fears ad get to know one another. You take care and God be with you Claire. Just to let you know I am 66 with Cerebellum Ataxia and also my sister two yrs young has this along with my only brother 2 yrs younger than my sister. My 2 older sisters are fine. Wishing you well and hope to hear from you!

[claire01 in reply to 4Heavenly]

Thankyou so much for your kind words and would very much like to talk to you.At thè moment just resting in bed (seem to think I am having a flare up 😏) totally get where you are coming from dread the winter months.

So happy for you regarding the mobility scooter,I myself have not got one very stubborn and self concious wont even use the cane or rollator I have but will soon have to àccept I need aids.

41 yrs young,was a carer,had to give up work 2yrs ago and no longer drive as my confidence has gone too,still get very low in mood at times but I have a top class partner and amazing kids so also thankful could be so much worse xx