Hi, I'm new to this site and to posting in general so forgive me if I get things wrong.
I have suffered from bouts of vertigo for many years. Just over a year ago I had what I (and the medics) thought was a heart attack. Since then the vertigo has been with me 24/7 and now I have ataxia as well. Like so many of the posts I've read, it's a living hell. The follow up consultation with the cardiologist said I had not had a heart attack. Although I have had several episodes since and used a GTN spray which has helped! He was convinced the vertigo had something to do with it (or vice versa). Anybody know any link between symptoms? To me the vertigo has sort of settled down into a permanent swaying unbalanced motion. Like others, I can't look up or sideways. My mother also had all these symptoms, but was never diagnosed with anything concrete. She died aged 73 (I'm now 71) having got dementia as well.
I am still waiting for an appointment ( 6 months) to see a physio, but to me now, it's gone much too far for that, and if I go, then I have to travel 50 miles, which I can't do. I cannot bear to be in a moving vehicle for very long.
I was always a very active and fit person so this is ghastly. I have to walk with a stick. As we're rural I use a ragwort fork around home which at least looks as if I mean business rather than looking frail. I've had so many near falls, but managed, with willpower to keep on my feet so far.
Any advice would be gratefully received. It is a relief just to know there are others going through the same thing.