Epilepsy and ataxia: Hi does anyone suffer with... - Ataxia UK

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Epilepsy and ataxia

Guyb profile image
Guyb
3 Replies

Hi does anyone suffer with seizures as well as ataxia I had massive fit yesterday

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Guyb profile image
Guyb
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3 Replies
wobblybee profile image
wobblybee

Hi Guy😊

Many years ago, I started experiencing deja vous episodes and had a seizure in my sleep. This happened before other ataxia symptoms appeared and I was diagnosed with Temporal Lobe Epilepsy.

Twenty years later when I finally had an MRI showing Cerebellar Atrophy, that along with other symptoms, gave me a diagnosis of SCA and the previous diagnosis was dismissed, I'd had that one seizure.

🙂xB

rankin1st profile image
rankin1st

Hi Guy my husband has had epilepsy for many years and has recently been diagnosed with attaxia possibility secondary to his medication I.e. it might be causing his attaxia. I am not so sure neurologist is right but thats another story. What medication are you on? my husband was taking lamotrogine and oxycarbimazipine but neurologist recently changed it as he felt it was poisoning Andy and making him attaxic. Now on zibinix and now husband like you is having bad grand malseizures. Previously seizure free! Very distressing for him and for you! So sorry you are having a difficult time it is very distressing but keep going. Our springer is great but not as attentive as your dog I am sure he/she isa great comfort Lisa

bobby1956 profile image
bobby1956

hi guy, im a epilepic [petamal] its minor. im controlled by meds. i dont have seizures but i was on dilantin [medication] for 56 years and it caused me cerebellar ataxia. ive done a lot of research on it.

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