Thanks

[Sharon_g]

Hi I am from South Africa and I just wanted to say Thank's for this site. I have read so many useful articles and got many questions answered

[margaretm]

Good luck, Sharon.

[HarryB Administrator]

Hi Sharon

I am delighted you find the site helpful.

Best wishes

Harriet

[february]

Dear Sharon_g, Nice picture! I find this site very helpful also! I'm a 62 year young woman, who was diagnosed with ataxia 12 years ago. I live in the United States-in the State of Michigan! Ataxia, being so rare, it's good to find sites like this that have people on them that understand what's it's like and ask questions, as well as give advice! A huge welcome and my best to you..., ;o)

[Sharon_g in reply to february]

Thanks for the compliment and welcome. Here from where I am i(SA) is nothing that's even close. When I got diagnosed I was so shock reading the post some how it makes me feel theirs is some hope

[Sharon_g]

Ps..I tried to make a "profile" picture didn't work....😉

[february]

Hi Again Sharon_g, I was shocked also when diagnosed, as I had never heard the word ataxia! In my case they (my neurologist) has no clue as to why I have ataxia, as no one in my family, as far back as we know, has/had ataxia. I've had genetic testing for the known dominant and recessive ataxia's, which was negative, as well as genetic "exome" testing, which was inconclusive. My neurologist still believes mine is a hereditary form, so hopefully one day they'll/ I'll know. I find exercises (safely) for strength and balance helpful, as well as eating as healthy as I can! Sites like this are so invaluable! Glad you found it! My best to you..., ;o)

[Sharon_g in reply to february]

Hi I am also still waiting for a type my neuro. Send bloods away and apparently it takes 3 4 months. The same here no one has ataxia and I didn't had serious injuries like a heart attack but he explained it can be a genetic or faulty gene on my mom or dad's side. .the last he spoke he said or the postman 😁.he always has a joke ready love him to bits. So yes that's why I read anything I can lay my hands on! You keep strong speak sòon

[Pec2884 in reply to Sharon_g]

Hi Sharon. Where in SA are you? I live in St Francis Bay in the EP. I don't have CSA but have Multiple System Atrophy although first diagnosed as the former. I found this site and still enjoy all the posts and suggestions.

.

[Sharon_g]

Hi I am in Johannesburg and this is the best site their is nothing evenue close I have to read up on your diagnosis also never heard of it , is it similar too Ataxia? Is that how you got to this site. I must say I wish I was staying in the UK it seems people has more suppory

[Pec2884 in reply to Sharon_g]

Yes the U.K. Does have a good support network. I found this site when first diagnosed with CSA. I had early problems with balance. Now I rely on MSA Coalition and other special sites but still check Ataxia UK . I used to live in Rivonia until we retired to the coast.

[Sharon_g]

I wish I could retire specially by the sea. Just keep readingand I hop you get better

[pashka]

Hi Sharon I also live in Johannesburg and like you find that there is very little knowledge of Ataxia here. I have traveled to the UK but still cant get definate answers. Maybe we can meet up and compare notes. Did you get diagnosed here. Maybe you can reply by email [e-mail] support in Johannesburg

Good Luck anyway

[Sharon_g in reply to pashka]

Hi I'll definitely email. Where in joburg do you stay?

[pashka in reply to Sharon_g]

HI sharon, I live near fourways. I got your email, thankyou, I will reply to you soon .

Keep well

[Sharon_g in reply to pashka]

☺