Hi, was diagnosed with idiopathic late onset cerebellar ataxia back in mid December, but when I saw neurologist in March he said it was mild. He tested for coeliac disease and did genetic testing, both of which have come back as negative. I am also having a CT scan in a week or so. Also had to arrange to see NHS physio but appointment is until mid May. At the moment everything is 'very mild' as the neurologist says and I know my symptoms, compared to some people, are probably extremely mild, but to me, there seems to be a definite change in the past few weeks. Today I went into town, parked and walked just a short distance ( a few hundred yards) to go in specific shops. To say I was relieved when I got back to the care was quite an understatement. I feel very 'heavy footed' when I walk, and seem to have difficulty 'taking in' everything, making just being out and about very tiring on my eyes. I am now constantly aware of planning my route before I set off to walk anywhere, and try to avoid steps (down) and uneven surfaces. At the moment I don't need a walking aid, but looked rather longingly at the disabled spaces nearer the shops, thinking, perhaps it won't be long before I would be grateful for one of those. Sorry, just feeling really down about it all at the moment.
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