Hi there I am a 31 year old women and my 8 year old niece has recently been diagnosed with ataxia, she has very low mobility And uses a wheelchair now when her legs get sore, she also suffers learning difficulties and epilepsy. My mum has just been tested for ataxia as her brother and mother had been diagnosed with it a few year back. However her mother passed away before we new of anything. I was wondering if any one has any advice or information regarding this condition as the doctors didn't tell us anything and I'm unsure what to expect. I appreciate any help or advice any one would like to offer, I've never tried a forum or support organisation so unsure if they any good.
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