Hi I'm new too all this. My 6 yr old daughter has been diagnosed just last Wednesday. I've been noticing clumsiness from about age of 1 1/2 yr old she was falling alot. Not walking very far as in pain.i have 3 other daughters ages 14-13- and 8. I've been reading they have a 1in 4 chance of having this terrible disease. I'm heartbroken its so cruel. I have not told my child she has this as she id at such tender age.. I have told my older 2 just a little bit about there younger sister. And how down the road she will need a wheelchair etc. I'm just looking for a bit of support as to get my head around this is so hard. Feel like I'm in a dream and its not real. I love my 4kids dearly. There my life like any mum out there. Also my husband can not accept it at all. His such a good dad. Any advice would be much appreciated 😊
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