Anyone suffer with cold knees??: I have had ataxia... - Ataxia UK

Ataxia UK

4,090 members4,664 posts

Anyone suffer with cold knees??

glosman profile image
14 Replies

I have had ataxia for over 30 years & so have got used to managing all the problems it causes, however recently I have found that my knees are becoming very cold (actually feel freezing to touch) particularly at night & the only way to get warm is to sit next to the fire. Unfortunately when I think I am warm & leave the fire they get very cold again so I am back to square one!!

As this is causing sever broken sleeps + getting me down a bit as I don't know what I can do about i,t I just wondered if anyone has found this or anything similar?? More importantly I would be most grateful for any suggestions as to what I could try to help this.

Thanks in advance

Written by
glosman profile image
glosman
To view profiles and participate in discussions please or .
Read more about...
14 Replies
Tiggywinkles profile image
Tiggywinkles

Mine is my hands, no one can believe how cold they feel even if the rest of me is fine. I have got some tablets from my GP to improve the circulation to them, which help a bit. Otherwise I just make sure I always have gloves with me for outside and indoors have to sit with a blanket over them. My legs do get cold too and I have the same problem with it keeping me awake. Get them warm and the rest of me is too hot - not sure of a cure, but at least you know you are not alone.

glosman profile image
glosman

Thanks good to know that I'm not on my own

wobblybee profile image
wobblybee

Hi glosman!

I had to resort to wearing thermal leggings and socks in bed.

Our sofas are awash with blankets and throws, roll on the

summer :-). xB

Tiggywinkles profile image
Tiggywinkles

It is obviously a problem that we share - the joys of Ataxia!!

PeteW profile image
PeteW

I get old knees too! Like ice !! I wear knee protectors or pads under my trousers and they help. Otherwise I'm afraid it's just your circulation gone rusty....best move fast as much as you can ie shake your hands vigorously or whatever you can do.

PeteW profile image
PeteW

standing up is best for circulation. 30 mins a day is a good amount. If you can do it yourself, that's great but there are standing frames out there for disabled peeps.

wobblybee profile image
wobblybee

My granny used to say standing too close to the fire gave you chilblains :-)

in reply towobblybee

As a child standong too close to the fire would get me a scolding for blocking the heat. :-) :-)

wobblybee profile image
wobblybee

My dad was a miner, we lived in a colliery house and it was common

practice to 'bank' the fire up. Shutting the damper and heaping coal

on the fire to keep it on a slow burn.

When we moved to a modern house, this practice was continued.

Unfortunately the modern chimney couldn't cope with this sort of

thing. My dad was on night shift, he banked the fire up and went

to bed, my mother, brother and I were out, and the chimney set on fire.

Luck was with us, neighbours woke my dad, the fire was put out,

but my mother gave him a right roasting :-) xB

february profile image
february

Dear Glosman, Coldness is usually associated with lack of proper blood circulation. It best if you talk with your doctor, as it may or may not be related to your ataxia..., ;o)

I do wear thick woolen socks to keep my feet nice and warm. I also wear a T-Shirt & heavy jumper during the day with warm tracksuit bottoms. Lovely and warm :-) -;)

wobblybee profile image
wobblybee

Snug as a bug in a rug, if you'll pardon the expression :) xB

wibblywobbly profile image
wibblywobbly

Long thick socks all day and night. Lots of throws on the sofa. In the future could be thermal long johns:) Just keep warm

Ocilac profile image
Ocilac

I don't have ataxia and I know it's a bit late to reply, but I get really cold knees and I have recently found great relief from a heat pad (mind you I have had to look for a long time for one that actually gets hot enough!).But yeah whenever I get cold, especially at night, I get my heat pad and wear it just on my knees and it helps immediately.

I'm not sure if this can help anyone.

As I said I don't have ataxia. I do have a different CNS condition, transverse myelitis, and I'm having tests to see if I have multiple sclerosis or lupus or something. In case this is relevant.

Good luck

Not what you're looking for?

You may also like...

Anyone else FED UP!

This is not meant to be a downer, but welcome to the world of the Greenwich NHS trust! Over 2 years...
DeniseLB profile image

Cold weather

Does anyone else find their ataxia symptoms worse in this cold weather? Stiffness and gait for me...
penelope2 profile image

hot and cold

My condition seems to have deteriorated lately. After my diagnosis 10 years ago, it went downhill...
klazien profile image

The Common Cold and Ataxia

Hi, Is it me or does the common cold knock you guys out too. I can get through any amount of pain...
Pager profile image

The Cold

I definitely think the cold makes the symptoms of ataxia worse I’ve just been out for a short time...
paul456 profile image

Moderation team

See all
HarryB profile image
HarryBAdministrator
VE93 profile image
VE93Administrator
WendyBom profile image
WendyBomModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.