I have had ataxia for over 30 years & so have got used to managing all the problems it causes, however recently I have found that my knees are becoming very cold (actually feel freezing to touch) particularly at night & the only way to get warm is to sit next to the fire. Unfortunately when I think I am warm & leave the fire they get very cold again so I am back to square one!!
As this is causing sever broken sleeps + getting me down a bit as I don't know what I can do about i,t I just wondered if anyone has found this or anything similar?? More importantly I would be most grateful for any suggestions as to what I could try to help this.
Thanks in advance
Written by
glosman
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Mine is my hands, no one can believe how cold they feel even if the rest of me is fine. I have got some tablets from my GP to improve the circulation to them, which help a bit. Otherwise I just make sure I always have gloves with me for outside and indoors have to sit with a blanket over them. My legs do get cold too and I have the same problem with it keeping me awake. Get them warm and the rest of me is too hot - not sure of a cure, but at least you know you are not alone.
I get old knees too! Like ice !! I wear knee protectors or pads under my trousers and they help. Otherwise I'm afraid it's just your circulation gone rusty....best move fast as much as you can ie shake your hands vigorously or whatever you can do.
standing up is best for circulation. 30 mins a day is a good amount. If you can do it yourself, that's great but there are standing frames out there for disabled peeps.
Dear Glosman, Coldness is usually associated with lack of proper blood circulation. It best if you talk with your doctor, as it may or may not be related to your ataxia..., ;o)
I do wear thick woolen socks to keep my feet nice and warm. I also wear a T-Shirt & heavy jumper during the day with warm tracksuit bottoms. Lovely and warm -
I don't have ataxia and I know it's a bit late to reply, but I get really cold knees and I have recently found great relief from a heat pad (mind you I have had to look for a long time for one that actually gets hot enough!).But yeah whenever I get cold, especially at night, I get my heat pad and wear it just on my knees and it helps immediately.
I'm not sure if this can help anyone.
As I said I don't have ataxia. I do have a different CNS condition, transverse myelitis, and I'm having tests to see if I have multiple sclerosis or lupus or something. In case this is relevant.
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