Frustrated with docs lack of urgency!!!

[Jayswife-24]

16 weeks to wait for physio,4-6 weeks to be seen by OT... Mental issues??? Hmmm ok mrs marshall I'll put your husband on a waiting list.... MRI.... We will be in touch!!! Wtf!! So angry if I make it my life's work I'm not gonna stop till people with ataxia are known! And everyone is aware of this condition

[Lionpeaches]

I'm sorry you're so frustrated, it's not nice, unfortunately that will probably become the norm!

Those wait times are actually not too bad to be honest, we've had a six month wait for a swallowing specialist, physio, wcs, neuros, neuro psych and OT quite frequently. Resources are finite, I don't think it's anything to do with ignorance over ataxia, more huge waiting lists no matter what the condition.

[Hidden]

I went for a hearing test at the beginning of December last year and was told by the ENT specialist that he was referring me back to my Neurologist as he thinks the dizziness/tinnitus and feelings of 'highness' problems I'm having may be related to the shrinkage of my cerebelum? He told me to get in touch if I hadn't heard anything within a couple of weeks! Its now March and I'm still waiting for word! Due to past experiences regarding waiting times I've just given up. The symptoms I have explained above appear on occasions and last for two mabe three weeks at a time. I don't have severe symptoms at the moment so I see any point in making a fuss. It feels as if the professionals feel I'm making too much of a fuss, therefor I just give in!

[wobblybee]

Hi Paula!

We're constantly reminded that resources are stretched to the limit

but it's hard to think reasonably about this when you're the one

looking for answers.

This Saturday I'm having an MRI. If all Hospitals appts were available

7 days a week, it seems logical to assume waiting lists would be reduced.

But I'm sure we all agree, it would be better if your average GP had an

inkling about Ataxia. xB

[Jayswife-24]

You've all had this condition a long time it seems so you know better than me how long it takes for appointments I just feel for you all like I do for my husband it seems so out of order to me that people and disease's are "shelved" for so long I won't go into politics but I just feel that if the government put more time & money into the people of Britain instead of tying the help the whole world there would be more reassures for us on the nhs

[february]

I live in the US, and as a rule, don't have to wait too long for appointments or tests. I have my own insurance. Are waits in the UK due to National Health Insurance? Just wondering, as, yes, I would be extremely frustrated and bewildered, especially if the reason for an appointment or test was critical..., ;o)

[Jayswife-24]

The nhs is so strained due to them cutting on costs by reducing staff and it's like a raffle who can have what done on nhs depending on how drastic your situation is for example my grandad is 83 and has been waiting for a hip replacement 3 months due to his old age he is apparently not priority

[annasgonesailing]

16 weeks for physio is short I had to wait 24 months for six sessions! You will get generic core exercises.

[cobrien24]

Hi I am 38yrs old and have just been diagnosed with cerebelleum ataxia and am in the exact same position awaiting OT to assess me and my needs (Been 10 weeks) and physio chased it up to only be informed I aint even on the list (got diagnosed 3 month ago) Its a joke and so bleeding frustrating and scarey