Pregnant with ataxia

[Itachi92]

Hi folks

I am 31, have sca3 and am 15 weeks pregnant. I’m unsteady , with slight balance issues. I still work but I’m concerned with how my balance will be affected by my growing bump.

Has anyone been in the same position?

[icdowsettNZ]

Granddaughter was same age when she had her son. She was very wobbly but really just had to be careful especially up and down steps. Now baby is two and runs very fast so gates need to be locked.We have SCA 42 in four generations.

All the best from New Zealand

[Itachi92 in reply to icdowsettNZ]

Thank you for sharing!

Can I ask if she felt like the pregnancy and birth made her ataxia worse or the same?

[klazien]

What about after the birth, when the baby needs to be carried safely?

[suzie44na in reply to klazien]

You find ways to manage in life, to be safe.

[icdowsettNZ in reply to klazien]

Sammy advises she" definitely found balance issues etc hard but pretty sure that happens with pregnancy anyway!I personally found it harder after I had given birth but found keeping as mobile as you can helps your body get back into the swing of things.

It's normal for pregnant people to waddle definite."

Sammy has 7 sisters and many nephews and nieces to compare pregnancies.

[icdowsettNZ in reply to icdowsettNZ]

Not all the 8 girls have had the test. But all very well informed. Here if you are positive no insurance company will insure you which means you can't get a mortgage or travel insurance.

[wobblybee]

🙂 It’s rare that any two Ataxias are exactly the same ..your Neurologist will be able to advise re your specific diagnosis.

🙂Best wishes

[Itachi92 in reply to wobblybee]

Thank you.

My OB said they’ll monitor me closely as they haven’t had a patient with sca3 in childbearing age who had been pregnant before.

[Bearbonny]

congratulations to you wish you the very best keep strong and enjoy your pregnancy x

[Itachi92 in reply to Bearbonny]

Thank you very much! Honestly can’t wait until I’m not pregnant anymore. 😅