Possible help!

[Jacqui-A]

Hi all,

Has anybody tried Taltirelin OD tablets, according to the website, they are supposed to treat Ataxia.

Any feedback would be great.

Stay safe

Jacqui

[wobblybee]

🙂 As you can see there has been a clinical trial, but it doesn’t look completed.

ClinicalTrials.gov Identifier: NCT04107740Recruitment Status : Recruiting

First Posted : September 27, 2019

Last Update Posted : October 2, 2019

See Contacts and Locations

[Jacqui-A in reply to wobblybee]

Thank you for your reply wobblybee, I didn’t realise there were clinical trials going on

[wobblybee in reply to Jacqui-A]

🙂 Yes Jacqui, there are a number of trials re ataxia. You can log onto clinicaltrials.gov and search for ataxia to see what’s happening.

[sonofapeter]

Hi Jacqui-A. I've been taking Taltirelin now for about 1 year. As everything I've tried, it starts out amazing, but then tapers off. I am unsure if it's more of a placebo effect? But I do know, every time I think about stopping taking it(its rather expensive), I stay off of it for about a day and definitely feel a lot more disorientated so I jump back on it quickly. But it has definitely not stopped my progression. Maybe. slowed it down? It would be nice to have someone smarter than me measuring this, but I always been concerned about it becoming unavailable so I don't tell too many people. If you can afford it, I'd say at least try it?

bio-japan.net/taltirelin-OD...

Best.

[Jacqui-A in reply to sonofapeter]

Thank you for your reply, nice to hear from someone who has been on it, yes it is rather expensive but if it works!!

[sonofapeter in reply to Jacqui-A]

Unsure if it truly works, but as we don't have any other solutions, I would say if you can afford it, it wouldn't hurt to try it, right?

Best.