Has anyone ever tried this?: bio-japan.net... - Ataxia UK
Has anyone ever tried this?
This drug may not have approval either in the US, or UK.
ClinicalTrials.gov Identifier: NCT04107740
Recruitment Status : Recruiting
First Posted : September 27, 2019
Last Update Posted : October 2, 2019
See Contacts and Locations
So far no results have been posted.
I've been on it for roughly 1 year now. I am unsure if it truly is doing anything? Could simply be a placebo effect. Every time I stop, I feel more disorientated so I jump back on it, but I don't feel like its helping as much when I first started. It definitely has not stopped the progression. Maybe, its slowed it down? I finally told a new neuro I saw because I have always been scared that if someone finds out, then it won't be available anymore? If you live in a country that allows shipping, this is another link-
mimaki-family-japan.com/ite...
It's not cheap, for something that may or may not work. Choose accordingly.
Best.