Q&A Zoom Meeting today 10 March 2021

[wobblybee]

Today at 2pm we are holding a Q&A session with Prof Paola Giunti and Suzanne Booth from the London UCL/UCLH Ataxia Centre. They will present information and answer your questions about Covid-19 and ataxia. Zoom link - bit.ly/3q5J9M4 Passcode: 855861

[Litty]

It was brilliant as usual - thank you all xx

[Sherena]

Where can I watch the recording of this. I always seem to find out the day after the session.

[wobblybee in reply to Sherena]

🙂 In due course there may be a link to You Tube.

[Sphinx21]

Oh I missed it is our speech and balance affected by COVID 19 if infected

[wobblybee in reply to Sphinx21]

It’s likely to depend on the individual as to how Covid would affect ataxia symptoms, or any underlying health problems.

[Sphinx21 in reply to wobblybee]

Thankyou for replying I thought that would be the case I had a severe case of vertigo some five or so years back I have ca (unknown cause )the vertigo lasted three months was very debilitating and on onset took my balance and speech I regained these slowly but to degrees but very frightening I don’t know what caused it but I had heard speech and balance could be affected with ataxia Thankyou for clarifying take care😊

[EireAtaxic in reply to Sphinx21]

My issues started in 1996 in college, a brain tumour, multiple surgeries. Developed severe vertigo while asleep 5 or 6 nights a week for about 3 years. Calmed in 2009 following my last surgery and radiotherapy. The vertigo has stopped but it was absolutely horrible. Still have severe lightheadedness and have the odd attack. All the best.