sca3 patient being treated as MSA

[Collinhucn]

A doctor recomanned me to be administered in hospital to cure my disease for 10 days. What worries me is that he kept talking about mutiple system atrophy (MSA) and I have been diagnosed to be sca3 in genetic test 4 years ago. Has anyone of you had the same experience? l am worried that once I have been in hospital, things may be detiorated faster.

[wobblybee]

🙂 Are you having symptoms that can only be treated in hospital? If so this is obviously the best decision.

[Collinhucn in reply to wobblybee]

Thank you, wobblybee, for the suggestion. 👍😀

[isabelalfaiate]

Dear collinhucn,I am not sure but I think you shoould get a second opinion. I have SCA3 and as far as I know there is no cure. Why is he treating you for MSA, it is not the same thing. I am sure the doctor knows better, but if you have been diagnosed with one thing it seems odd to get treatment for something else. I would definitely get a second opinion.

Best wishes

[Suebeeee]

I wonder if its a treatment only approved for MSA that has hopes of helping sca3. My family member is going through a similar thing (in USA) - doc proposing IVIG treatment (immunotherapy) that is approved for MSG (Myosthenia Gravis).