SCA 2 update

[vinupr]

My name is Vinu Radhakrishnan, I have SCA 2 for the last 6years. I am looking for a good friend to share my thoughts with and discuss ataxia diseases. Thanks

[Sunny8088]

we have whatsapp group for ataxia

[wobblybee]

🙂 You might be interested in this link from ataxia.org

India Support Group Leader (SAMAG)

"Seek a Miracle Ataxia Group"

Chandu Prasad George

Hyderabad, Secunderabad, India

Phone #: [phone]

Alternate Phone #: [phone]

E-mail: [e-mail]

Facebook Group: facebook.com/groups/1359991...

Support Group Email: [e-mail]

[vinupr in reply to wobblybee]

Thank You So Much.

[wobblybee in reply to vinupr]

🙂 This is current information, but I gave the same link to someone else in India and they told me the person named in the link had passed. But, the group should still be contactable.

[vinupr in reply to wobblybee]

Hello Wobblybee,I got another piece of information about the Indian Watssup group. the group admin number is 407-701-2989.

[wobblybee in reply to vinupr]

🙂 Thank you so much for passing this on.

[wobblybee in reply to vinupr]

🤔 Is this a number in India. I’m just wondering if the contact is actually in Florida.

[Piero]

If you keep in regular touch with this site Vinpur, you'll gradually accumulate a great deal of helpful advice. As we're all to some extent in a similar situation to one another, much of what's posted is significant to each and to all of us. Look forward to seeing your next post.

[Lucycord123]

Hi vinu

I'm Lucy. U also have SCA2, diagnosed 2 years ago but I've been certain I had it since the age of 27.

How are you getting on? I'm 32, I have good days and bad days. Always pain when walking but I'm still working.

Lucy