Ataxia and blurry vision

[aburt449]

Good morning all

I hope u all had a good Christmas despite the circumstances .

I would like to ask if any of you have problem with progressing blurry vision. A week ago I woke up where everything was a blur and couldn’t see anything what was written. I thought that after 2h it will go away but unfortunately it hold me for the next 2 days. I rang 111 and they send an ambulance. However as my 10 years old son was with me I couldn’t go to hospital with them to be tested (husband was on night shift). It really scared me I thought I might be going blind 😭

[wobblybee]

I’m so sorry, that must have been especially scary when you were alone with a child. I’ve seen posts mentioning blurred vision, but whether or not this is definitely linked to ataxia will depend on a specialists opinion. My own eyesight is becoming progressively blurred, in my case this is thought to be linked to Cataracts but I’m waiting to see a Specialist to have this confirmed.

[aburt449 in reply to wobblybee]

Oh bless u wobblybee. I had extra eye test done about 2 months ago due to my progressive blurry vision but my specs stays on the same prescription and been told it must be more neurological issues. I am trying to avoid trips to gp’s as in this case they have no clue what to do.

[wobblybee in reply to aburt449]

In my experience GPs are only able to help by making a referral for further investigation, specialist opinion is essential, but at the moment hard to get. Just before the first lockdown I was put on a waiting list to confirm Cataracts were causing my most recent problem of blurriness. My eyesight is fairly good, I have minimal strength in both reading and distance glasses, but other eye problems affect accuracy. 🙂I’ve had very good treatment by a NeuroOpthamologist, my Optician made a referral to a local hospital eye department after she detected abnormalities.

[aburt449 in reply to wobblybee]

I’m glad u have been referred for further investigation and wish u all the best with sort sorting out 🙂. I will try get in touch with my gp and see if he can refer me further but as u said atm it might take a long time .

[12monkeys]

My first symptom was blurred vision which then became double vision with nystagmus(wobbly eyes) not sure if it’s the same for all sufferers but it may sound horrible but u do get used to it unbelievably. Hope u get some clarification soon 👍

[aburt449 in reply to 12monkeys]

Thank u I hope so too 🙂

[Driven1]

My daughter has SCA2 and has developed double vision. Easiest seen when looking at traffic lights. Nothing can be done about it. Will eventually lead to loss of eye control.

[aburt449 in reply to Driven1]

Thank U for ur reply. Not the news I really wanted to hear 😩hoped it’s just temporary.

[Driven1]

The deterioration with Ataxia is continuous. Age of onset is very important in the way the disease develops and how rapidly it progresses unfortunately