Speech therapy

[Amynah]

Hi everyone and thanks in advance for your replies.

I wanted to know about speech therapy lessons.

I have SCA1 and my speech is becoming slurred. I went to SLT and they wanted to put a tube down my throat instead of giving me exercises to correct my speech. I won't say more...

Thanks

[majajefferies]

I am so sorry to say that so far we haven’t found anyone who took time or effort to actually devise a therapy plan and work with our son.

All they seem to be interested in is testing, not therapy.

I hope you have more joy!

[Don21]

Like you,I found that they were only interested in my swallowing. They haven’t been around since the lockdown and honestly it was a relief. Donna

[Libra7]

I too have slurred speech problems. Following an appointment at the Ataxia Department at UCH London in January I was offered five on line speech therapy sessions. They mostly consisted of practising various tongue twisters which you can easily access on line and if you have a printer you can down load them. There may be books of them which you could probably get from Amazon. I find that if I practise them for about twenty minutes each day my speech does become a little easier. It’s not a cure but it certainly helps.

[Amynah in reply to Libra7]

Thanks, I go to uclh and the ataxia department sent me to a SLT who wanted to test instead of therapy. I would like to mention your case to uclh - can I do that?

[Libra7 in reply to Amynah]

Yes - of course you can quote my case. I don’t know what SLT is? I do think you would benefit from practising tongue twisters. I try to do them when my husband is out so as not to sound ridiculous!