Mild cerebellar atrophy

[Burtie-bengal]

Hi

My husband had a scan for suspected tia/strike after temporary loss of vision back in November 2019.

The results of the MRI came back with mild cerebellar atrophy and 2 microbleeds.

The stroke consultant said not to worry and try to blame alcohol as a cause although my husband doesn’t drink. After complaining to the hospital we saw an awful neurologist who said it was all normal nothing to worry about and diagnosed migrane.

She ignored my husband symptoms of muscle tremors in hands and legs, sleeping around 18hrs a day, vision issues and very poor memory.

She blamed these on complex ptsd( he has this and pain due to being shot in 2008 in Iraq)

My husband isn’t happy with this and wondered if this could be related to ataxia??

Kind regards xx

[wobblybee]

😕 I’m so sorry you’ve had this experience, it’s obviously been very distressing. It is highly likely that the symptoms you describe are associated with Ataxia, since your husband has had an an MRI showing Cerebellar Atrophy.

But, Neurological conditions can often ‘overlap’ with symptoms. Not all Neurologists have experience of Ataxia, and it has to be said, they can be less than sympathetic, it is rare and can be difficult to diagnose accurately.

Ask your GP if it’s possible to be referred to someone who actually specialises in Ataxia, or if your husband can be referred to an Ataxia Centre.

[Jacqui-A]

I have Cerebella Atrophy and was diagnosed 18 months ago after an MRI scan, although I new something wasn’t quite right several years before.

I moved to Suffolk from Somerset where I was dismissed by two separate GP’s.

My neurologist has said that it is nothing I have done.

Of late my mobility has got worse but I have not suffered any tremors and I don’t sleep during the day. My memory is okay as is my vision.

Hope this helps.

[Rezzy3]

This was difficult to read through because it sounded almost like my medical record and probably like most everyone’s records on this site. I know what you’re going through and it has compelled me to reply. Hope is the only thing you have and it’s what doctors love to take away by dismissing you.

A random mri from a neuro-ophthalmologist caught sight of the atrophy. He happened to see similar cases as he looks into double vision and now he is able to go back to former patients and review for similar symptoms.

A side view or lateral view mri may help get the right picture for you.

Always have hope!

[coat2003]

I wouldn't dare to even suggest.He needs a proper medical examination by a specialised army neurologist.Now you won't believe what I say. I am originally froom an ex communist country, Czechoslovakia, now split Czechia and Slovakia.My ma used to work for a military kitchen, a school for higher echelons...She used to come up with experiences. Technically speaking she suffers from....whatever and ONLY the military trained (not combat)medic gave her an answer. and it was spot on.all non-military doc were shanting her from here there and everywhere and all docs guessing.

What gave me the idea to write this, when you mentioned your hubby being was he a military personnel? or just an ordinary civilian? either though pay a specialist, if you can afford it.

One word of caution.I suffer from inherited ataxia and have no pain.correct me if wrong, didn't know one can have ataxia and pain....sounding weird.brain injury, stroke, pain yes.but a very experienced neurologist should point you right.