I know we have to keep going!: This is partly to... - Ataxia UK

Ataxia UK

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I know we have to keep going!

DeniseLB profile image
10 Replies

This is partly to do with conversations that I have been having on the site recently and my new found admiration for cocoa, not the drink.

You keep going girl, its okay I am saying that as a 56-year-old and if you look on e how your husband may be able to fix your washing machine in the short term. I once used bubble gum!

I was shocked and rather pleased that Sainsbury put me in as one of the disabled so I am able it seems to have a slot once a week, if I could have, I would have jumped up and down for joy!

Sadly, the reality was as I expected. I was not greedy in my order, but prior to actually getting anything you have probably guessed it, no loo rolls, kitchen rolls, eggs, cheese, tooth paste or any canned items.

I don’t look or dress it seems as disabled, in fact if I am sitting or just standing it seems I look like any other regular person! So when he turned up in his mask with his very strong Italian accent he said I thought I was just delivering to “old people”

it changed slightly when he was just going to leave the stuff on the floor and I did say that if I get down there I will never get up again. He did actually laugh and he put my stuff into bags that I provided, so how do I take this, firstly it seems I am not old so I should be happy.

My friends and even my closest think they should keep their distance from me, or maybe they don’t like me as much as I thought. Thank god the weather is improving! The point is I am so lonely doing this on my own, any ideas?

Denise xx

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DeniseLB profile image
DeniseLB
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10 Replies
ww-wibblywobbly profile image
ww-wibblywobbly

Ah I feel for you Denise.

I'm confined at home (11 days so far) but I do have my husband and adult son here with me, so not really the same situation as you - I know!

I found the first week fine, but tbh this week I'm finding difficult.

I'm a very social person and I really need my friends to keep going.

Use the social media to keep in contact. You can always face time someone, and of course telephone people. They're all keeping away for your own protection - because they care.

Yesterday I was texting one of my very good friends and she could see that I'm down. So we've decided to send each other at least one photo of our day every day.

Keep contact up with people as much as possible and of course keep posting on here.

I haven't been out at all. I'd like to but my husband and son insist that I don't. Just to supermarket, but no I must stay at home.

At least the weather is lovely. Do you have a garden?

When I figure out how to add a photo on here I'll show you my photo from yesterday.

I don't know if you are also talking about practicalities too. I don't think I'm the best person for this advice as I don't live alone.

Keep positive and pick the phone up to call your friends. Post on here as much as you want, we're all here for each other.

Love

Alison xx

DeniseLB profile image
DeniseLB in reply toww-wibblywobbly

Thank you so much Alison and I know there are people far worse off than me.

And on the up side it seems I don't look old!

I do have a garden and I will go and sit in it for a while. I was just feeling a little sorry for myself as I was ill most of the winter and as the weather has improved so has my health and I did have quite a few plans this month which have all been cancelled. We were meant to have a family get together as it was this time last year that my mum died.

I am normally quite a happy person and I just get on with life.

Denise xx

pinjem profile image
pinjem in reply toDeniseLB

Great advice from Alison. If you can, perhaps you could volunteer to chat with other people. Coming to terms with isolation is very difficult, acceptance is very difficult but the only way forward.

DeniseLB profile image
DeniseLB in reply topinjem

My sister actually said something about that as she said I can talk for England and then I mentioned that we are actually Welsh! Any idea who I would contact?

cocoa profile image
cocoa in reply toDeniseLB

The NHS are looking for volunteers to help with the Covid crisis to help contact lonely people self isolating … I am sure you can find the details online

pinjem profile image
pinjem in reply toDeniseLB

It is not specifically set up in Wales yet...that will change but these people may help? volunteering-wales.net/vk/v...

DeniseLB profile image
DeniseLB in reply topinjem

My family is all from Wales but I actually live in London, but thank you for the info. I have signed up with my local council but there does not seem to anything they think I can do at the moment!

Pacitto profile image
Pacitto

Hiah, I think this is very difficult for so many folks. Are there any groups in your are that can assist you. The government have asked for a huge amount of people to assist in shopping, prescriptions, phone calls to talk to people etc.

Don't suffer in silence reach out we will answer stay safe xx

Maxineto profile image
Maxineto

Being home with my loving dog, Roma, makes it easier for me. She is my company plus I have to take her out 3x a day so that gives me incentive to keep going. We all have to keep going. That's all we have during these times. Please all, stay safe, stay home. So happy I have TV, Internet, books and Roma.

Guido37 profile image
Guido37

Sweet heart there are many of us. Take care

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