Multiple System Atrophy

[monsterbadger]

Hi. My mum was diagnosed with a less common form of ataxia about 5 years ago. She’s degenerated very quickly and a new consultant is suggesting a diagnosis of multiple system atrophy now. Does anyone have any experience with this?

Thank you.

[wobblybee]

🙂 You might find it helpful to search healthunlocked for ‘ multiple system atrophy’. Look at the links, click on Multiple System Atrophy Trust.

[klazien in reply to wobblybee]

Look into this website:

msatrust.org.uk/what-is-msa/

[coat2003]

never heard of it...Keep your chin up, however scary it sounds...I have sca2...ru sure it is not MS, or some other misdiagnosis? take 2nd opinion, 3rd if needs be.

[auntiesally in reply to coat2003]

Hello, do you take any medication

[monsterbadger in reply to coat2003]

It’s now a confirmed diagnosis and the outcome looks pretty bleak. Average time with MSA is about 6 years and she’s already hit that milestone 😢.