Multiple System Atrophy: Hi. My mum was diagnosed... - Ataxia UK

Ataxia UK

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Multiple System Atrophy

monsterbadger profile image
5 Replies

Hi. My mum was diagnosed with a less common form of ataxia about 5 years ago. She’s degenerated very quickly and a new consultant is suggesting a diagnosis of multiple system atrophy now. Does anyone have any experience with this?

Thank you.

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monsterbadger profile image
monsterbadger
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wobblybee profile image
wobblybee

🙂 You might find it helpful to search healthunlocked for ‘ multiple system atrophy’. Look at the links, click on Multiple System Atrophy Trust.

klazien profile image
klazien in reply to wobblybee

Look into this website:

msatrust.org.uk/what-is-msa/

coat2003 profile image
coat2003

never heard of it...Keep your chin up, however scary it sounds...I have sca2...ru sure it is not MS, or some other misdiagnosis? take 2nd opinion, 3rd if needs be.

auntiesally profile image
auntiesally in reply to coat2003

Hello, do you take any medication

monsterbadger profile image
monsterbadger in reply to coat2003

It’s now a confirmed diagnosis and the outcome looks pretty bleak. Average time with MSA is about 6 years and she’s already hit that milestone 😢.

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