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CLL Support

22,660 members • 38,890 posts

All posts for March 2021

Astra Zeneca - no proof it causes blood clots

Very reassuring piece from The Guardian- can only think now this is a political issue not a medical one. During trials 28% receiving placebo vaccine reported...

Very reassuring piece from The Guardian- can only think now this is a political ...

YelvertonDevon

•3 years ago

17 Replies

Cannabis and CLL?

Alternative treatment of CLL? I have been reading about the story of cannabis and its treatment on CLL. I will tell you why I am interested to know about...

Alternative treatment of CLL? I have been reading about the story of cannabis a...

Sagarcanada

•3 years ago

40 Replies

1st Phizer Dose

Vaccine dose number one administered! Just wanted to let everyone know I received my first dose of Phizer vaccine on Saturday. My arm was a little sore at the...

Vaccine dose number one administered! Just wanted to let everyone know I receive...

Litevibe

•3 years ago

13 Replies

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CORONAVAC VACINE

I had my first shot of the Chinese vacine with no real noticeable reactions. I will be getting my second shot tomorrow

I had my first shot of the Chinese vacine with no real noticeable reactions. I w...

giuliano

•3 years ago

12 Replies

Harmfulness to others

Does ibrutinab make you radioactive? How careful do you have to be around other people so they aren’t affected by the medication you are on?

Does ibrutinab make you radioactive? How careful do you have to be around other ...

Clubhouse

•3 years ago

16 Replies

Good news and bad news?

Hello, I have posted before. I am stage 4 cll, stage 3 severe copd with emphysema, stage 3 non alcoholic steto hepatitis, and other serious medical problems....

Hello, I have posted before. I am stage 4 cll, stage 3 severe copd with emphysem...

Lancerlady

•3 years ago

4 Replies

Rashes with Ibrutinib

Hello, my mother is on Ibrutinib for an year now and her blood counts are gradually improving. However, today I observed rashes on her arm which are non-itchy...

Hello, my mother is on Ibrutinib for an year now and her blood counts are gradua...

Vikpp

•3 years ago

18 Replies

Allery test & CLL

Hi All. I'm newly diagnosed and new to this group. Wondering if anyone has had a similar experience with allergies. Six years ago, I took an allergy skin test...

Hi All. I'm newly diagnosed and new to this group. Wondering if anyone has had a...

Tracibfine

•3 years ago

20 Replies

SLL - can it be detected with a blood test?

If I understand correctly (please correct me if I'm wrong) - SLL and CLL are the same disease, but they have different manifestations: - in case of SLL,...

If I understand correctly (please correct me if I'm wrong) - SLL and CLL are the...

mantana

•3 years ago

8 Replies

Headaches and tooth pain from imbruvica

I am on imbruvica for SLL and having persistent headaches. Sometimes even my teeth hurt. Has anyone else experienced this?

I am on imbruvica for SLL and having persistent headaches. Sometimes even my te...

pianogal

•3 years ago

4 Replies

Ibrutinib ..Sore Infected Fingers (paronychia)

Has anyone with CLL on Ibrutinib suffered with this? My mum seems to be getting one side effect after another. She is on a second course of anti biotics...

Has anyone with CLL on Ibrutinib suffered with this? My mum seems to be getting ...

mouseygirl

•3 years ago

13 Replies

Vir-GSK antibody in COVID trial reduces hospitalisations by 85 percent in high risk patients

Another weapon in the anti COVID armoury, VIR7831. Despite its anonymous sounding name the drug has real promise as an early treatment for symptomatic patients...

Another weapon in the anti COVID armoury, VIR7831. Despite its anonymous soundin...

bennevisplace

•3 years ago

3 Replies

Watch & Wait-WBC & Abs.Lymph. Dropping Slowly

Just curious, have many had WBC and Abs Lymph. counts continue to fall slightly over a period of 4ish years? Trying to get a feel for this. Thanks!

Just curious, have many had WBC and Abs Lymph. counts continue to fall slightly ...

Splash24

•3 years ago

16 Replies

ibrutinib and rising Blood Pressure

Hi, I'm new here I started to use ibrutinib in June 2020 which has now controlled my CLL but the problem I have is my Blood Pressure has slowly increased to a...

Hi, I'm new here I started to use ibrutinib in June 2020 which has now controll...

street675

•3 years ago

14 Replies

COVID19: Old T cells stand up to new variants

More encouraging news. A pre-print of a study (not yet peer reviewed) demonstrating that T cells in subjects, either previously infected with the original...

More encouraging news. A pre-print of a study (not yet peer reviewed) demonstrat...

bennevisplace

•3 years ago

5 Replies

Easing of lockdown anxiety

How are you all feeling about the easing of lockdown? Is anyone else feeling really anxious about it? Vaccinations have clearly been a game changer but...

How are you all feeling about the easing of lockdown? Is anyone else feeling rea...

Floxxy

•3 years ago

2 Replies

Yes we DO have a much lower antibody response to Covid vaccination

In a new study https://www.bbc.co.uk/news/amp/health-56351084 only 13 percent of blood cancer patients had an antibody response three weeks after their first...

In a new study https://www.bbc.co.uk/news/amp/health-56351084 only 13 percent of...

bennevisplace

•3 years ago

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Calquence with Rapid Pulse

Pulse flucuciating from 70’s to 107 upon standing. I am on Calquence for CLL and my hemoglobin is 10. 9. I had a sigmoidoscopy yesterday. Has anyone...

Pulse flucuciating from 70’s to 107 upon standing. I am on Calquence for CLL and...

Mackiec1108

•3 years ago

4 Replies

which type of CLL fast progression or slow progression might be this?

I have been quite active during the past few days to read different posts and ask questions about CLL as I am curious to explore something interesting so that...

I have been quite active during the past few days to read different posts and as...

Sagarcanada

•3 years ago

6 Replies

CLL under W&W and Covid Vaccine

I live in B.C. Canada and I am trying to figure out if I qualify for the Covid vaccine at the time of the "clinically extremely vulnerable" phase. I have CLL...

I live in B.C. Canada and I am trying to figure out if I qualify for the Covid ...

TheMah

•3 years ago

11 Replies

Covid Jab Side Effects Are 'Normal', Say UK GPs. But Here's When To Seek Help

It’s “normal” for people to experience mild side effects after having the Covid-19 vaccination, GPs have said. The most common side effects of the jab, which...

It’s “normal” for people to experience mild side effects after having the Covid-...

Jm954

Administrator•3 years ago

13 Replies

Bendeca

Being treated with Bendeca for lymphfoma. Any info for what to expect would be appreciated.

Being treated with Bendeca for lymphfoma. Any info for what to expect would be a...

Whalexx

•3 years ago

2 Replies

Water and Optimism

Hi Greg Relax you have not jumped off a cliff into a dark abyss. Your prognosis for achieving complete remission when your watch and wait period turns to...

Hi Greg Relax you have not jumped off a cliff into a dark abyss. Your prognosis ...

Hidden

•3 years ago

4 Replies

CLL Society Monthly Support Meetings by ZOOM

There are more than 30 CLL Society meetings on Zoom scheduled for this month see: https://cllsociety.org/events/ - With Zoom the participants can be...

There are more than 30 CLL Society meetings on Zoom scheduled for this month see...

lankisterguy

Volunteer•3 years ago

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V & O combination therapy

..... i must add to my previous posts: I asked my Consultant how many patients he has treated with this combo. His answer shocked me: He said 55 patients. I...

..... i must add to my previous posts: I asked my Consultant how many patients h...

RitaBa

•3 years ago

30 Replies

Day 2 of Obinutuzamab

Well i am speechless : my WBC fell from 187 yesterday to 3.2 this morning !That is after a 100 ml dose. Simply amazing. I didn"t get any tremors just a mild...

Well i am speechless : my WBC fell from 187 yesterday to 3.2 this morning !That ...

RitaBa

•3 years ago

7 Replies

Do CLL patients have protection against COVID post-vaccination?

There is apparently no data on this very important question, as cancer patients were excluded from all the trials. My hematologist believes, though, that we...

There is apparently no data on this very important question, as cancer patients ...

Rmiller32x

•3 years ago

12 Replies

BRUIN Study: phase 1/2 study of Pirtobrutinib (formerly Loxo 305) in relapsed or refractory B-cell malignancies

Patients discontinue BTKi's due to resistance and intolerance. We evaluated the safety and efficacy of Pirtobrutinib (working name; formerly known as...

Patients discontinue BTKi's due to resistance and intolerance. We evaluated the ...

Jm954

Administrator•3 years ago

44 Replies

CDC recommendations

Please chime in with your knowledge/opinions about how these guidelines apply to CLL patients. Dare I hope to help care for new grandsons???

Please chime in with your knowledge/opinions about how these guidelines apply to...

Sunfishjoy

•3 years ago

22 Replies

WBC treatment level

My last blood test 2 weeks ago showed my WBC to be72. 6.My next test is next Wednesday(17/03/21).At what level should I require treatment. I don't think my...

My last blood test 2 weeks ago showed my WBC to be72. 6.My next test is next Wed...

Hidden

•3 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for March 2021

Astra Zeneca - no proof it causes blood clots

Cannabis and CLL?

1st Phizer Dose

CORONAVAC VACINE

Harmfulness to others

Good news and bad news?

Rashes with Ibrutinib

Allery test & CLL

SLL - can it be detected with a blood test?

Headaches and tooth pain from imbruvica

Ibrutinib ..Sore Infected Fingers (paronychia)

Vir-GSK antibody in COVID trial reduces hospitalisations by 85 percent in high risk patients

Watch & Wait-WBC & Abs.Lymph. Dropping Slowly

ibrutinib and rising Blood Pressure

COVID19: Old T cells stand up to new variants

Easing of lockdown anxiety

Yes we DO have a much lower antibody response to Covid vaccination

Calquence with Rapid Pulse

which type of CLL fast progression or slow progression might be this?

CLL under W&W and Covid Vaccine

Covid Jab Side Effects Are 'Normal', Say UK GPs. But Here's When To Seek Help

Bendeca

Water and Optimism

CLL Society Monthly Support Meetings by ZOOM

V & O combination therapy

Day 2 of Obinutuzamab

Do CLL patients have protection against COVID post-vaccination?

BRUIN Study: phase 1/2 study of Pirtobrutinib (formerly Loxo 305) in relapsed or refractory B-cell malignancies

CDC recommendations

WBC treatment level

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