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CLL Support

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All posts for October 2016

The role of clothing in the spread of hospital acquired infections

'Hospital-acquired infections are a common problem affecting about one in 25 patients, according to the CDC. It is widely known that hand washing and...

'Hospital-acquired infections are a common problem affecting about one in 25 pat...

AussieNeil

Administrator•7 years ago

4 Replies

How many CLL suffers are Cystic Fibrosis Carriers

Here is interesting read not routinely covered. https://treato.com/CLL,Cystic+Fibrosis/?a=s

Here is interesting read not routinely covered. https://treato.com/CLL,Cystic+Fi...

Hidden

•7 years ago

4 Replies

Surgery isn’t always the best option, and the decision shouldn’t just lie with the doctor

Billions are spent worldwide on surgical procedures that may not be effective. But how should we define effectiveness? There is a growing acceptance that...

Billions are spent worldwide on surgical procedures that may not be effective. B...

AussieNeil

Administrator•7 years ago

3 Replies

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Obinutuzumab Treatment--What to Expect

Hello folks, After nearly eight years of slow-growing CLL, I finally had to have treatment. Was hospitalized for a couple of days last week for the first...

Hello folks, After nearly eight years of slow-growing CLL, I finally had to have...

Ducksoup

•7 years ago

35 Replies

CLL Diagnosed by fluke

New here, went for a routine ultrasound in 2015, found multiple enlarged peasize lymph nodes in stomach area. Upon further testing I was diagnosed with CLL I'm...

New here, went for a routine ultrasound in 2015, found multiple enlarged peasize...

bacimio

•7 years ago

12 Replies

Goal ticked off!

Hi Everyone , I was diagnosed with CLL in May this year - 52 yrs young, physically fit and healthy female. To say it was a shock is a massive understatement....

Hi Everyone , I was diagnosed with CLL in May this year - 52 yrs young, physical...

Jackim

•7 years ago

9 Replies

Cranberries crush bacteria's communication networks

'...a new study has revealed that these berries might just be able to succeed where conventional antibiotics are struggling: stopping bacterial infections...

'...a new study has revealed that these berries might just be able to succeed wh...

AussieNeil

Administrator•7 years ago

1 Reply

Neutropenia again

My husband had a bad pneumonia and admitted to the hospital. He has been having neutropenia and low WBC at 1.7 for several months. The heme-onc physician was...

My husband had a bad pneumonia and admitted to the hospital. He has been having ...

Jani14

•7 years ago

11 Replies

Happy day / complete remission

I received my results after finishing my FCR/Duvelisib trial treatment August 20th. And I wanted to share my good news with you all. I had a bone marrow...

I received my results after finishing my FCR/Duvelisib trial treatment August 2...

Dinasantos

•7 years ago

36 Replies

Regular dental check ups linked to significant protection against bacterial pneumonia!

With death from illness responsible for between 20 and 50% of all CLL patient deaths, many due to pneumonia, I was encouraged to read that just having regular...

With death from illness responsible for between 20 and 50% of all CLL patient de...

AussieNeil

Administrator•7 years ago

5 Replies

Dr. Andrew Roberts with new data from EHA on Venetoclax used in combination with Rituximab. And my quick visit to San Francisco tomorrow

Friends, In the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. Andrew Roberts from a discussion we had about the...

Friends, In the Conference Coverage section of the CLL Society website, we’ve po...

bkoffman

CLL CURE Hero•7 years ago

4 Replies

Hello from Canada

Hello from Canada. I'm a 58 year old widower with a career (retired) in healthcare. I was diagnosed with CLL in mid-December 2015. I had recurrent...

Hello from Canada. I'm a 58 year old widower with a career (retired) in healthc...

BillMcT

•7 years ago

11 Replies

Imbruvica

Imbruvica My husband will be starting Imbruvica tomorrow. He has relapsed CLL. We would like to know how othets take the pills--with or without food and what...

Imbruvica My husband will be starting Imbruvica tomorrow. He has relapsed CLL. ...

Margobleu

•7 years ago

5 Replies

Any members of tribe CLLers, here?

I keep reading certain studies which identify Jews of Eastern European extraction as a risk group for CLL, but I have only met a few...I was curious if there...

I keep reading certain studies which identify Jews of Eastern European extractio...

YjbCLL

•7 years ago

14 Replies

Huge change in doubling time of WBC

I'm new here. I'm 70 years old, been diagnosed with cll on 8/2014, with wbc=14. I've been on watchful waiting since then. On 4/2016 I had wbc=22. Since then (5...

I'm new here. I'm 70 years old, been diagnosed with cll on 8/2014, with wbc=14. ...

moti99

•7 years ago

7 Replies

Liver damaged by CLL soon since beginning

Hi All, I'd like to share my concerns with you guys, as I am worried that my CLL which was diagnosed last February - has affected my liver, a biopsy showed CLL...

Hi All, I'd like to share my concerns with you guys, as I am worried that my CLL...

ezabella

•7 years ago

11 Replies

London Conference 11 Nov 2016

The London CLLSA conference is getting close. The meeting is oversubscribed so if anyone has registered but is unable to attend please cancel your registration...

The London CLLSA conference is getting close. The meeting is oversubscribed so i...

Myrddin

•7 years ago

3 Replies

MY 36 yrs husband is on stage2.

Hello. I am a mother of 10 month baby boy. its been a week found out my husbanand has ccl, stage 2. He is an amazing family man and I can not accept this...

Hello. I am a mother of 10 month baby boy. its been a week found out my husbanan...

Kenmom

•7 years ago

58 Replies

Australian Government has committed to new reforms aimed at streamlining access to medicines including novel and life-saving therapies

'A number of reforms recommended by the Medicines and Medical Devices Review address key recommendations the Leukaemia Foundation has made in multiple...

'A number of reforms recommended by the Medicines and Medical Devices Review add...

AussieNeil

Administrator•8 years ago

1 Reply

Clive James interview on Victoria Derbyshire program

Clive James talking about CLL and the treatment with Ibrutinib that is keeping him going long after he had expected. http://www.bbc.co.uk/programmes/p04d5w1q

Clive James talking about CLL and the treatment with Ibrutinib that is keeping h...

Myrddin

•8 years ago

7 Replies

Flu Shot

Anyone ever have the armpit lymph node blow up immediately after getting the flu shot?

Anyone ever have the armpit lymph node blow up immediately after getting the flu...

YjbCLL

•8 years ago

10 Replies

Symptoms but blood count stable.

HI, can anyone explain why I have symptoms i.e. night sweats, infections, loss of weight, and yet my blood count is relatively stable? My doctors ignore these...

HI, can anyone explain why I have symptoms i.e. night sweats, infections, loss o...

Eric70

•8 years ago

8 Replies

I miss OJ

Seems like a small thing but sometimes it's the little things that count. 4 months into Imbruvica and what I miss most is a cold glass of orange juice in the...

Seems like a small thing but sometimes it's the little things that count. 4 mont...

RJR1

•8 years ago

6 Replies

Explainer: how do you get shingles and who should be vaccinated against it?

'Shingles occurs due to a reactivation of the varicella-zoster virus that lies dormant in the skin nerve roots after causing the childhood disease...

'Shingles occurs due to a reactivation of the varicella-zoster virus that lies d...

AussieNeil

Administrator•8 years ago

7 Replies

FCR round 1

Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and...

Just an update on my first treatment. I was extremely ill with nausea during rou...

Kenn123

•8 years ago

8 Replies

Melbourne Australia CLL Education Day - Thurs 10th November, Prof Peter Hillmen from Leeds UK and chairman of BNCI CLL Trials subgroup

Peter Hillmen from Leeds, UK will be joining local experts to give us the latest information for the treatment of CLL. Time: Thursday 10th of November 1:30...

Peter Hillmen from Leeds, UK will be joining local experts to give us the latest...

AussieNeil

Administrator•8 years ago

3 Replies

G6PD?

I wonder if anyone is aware of a connection between G6PD deficiency and CLL. I have not been tested for G6PD but my kids were, and found positive. I personally...

I wonder if anyone is aware of a connection between G6PD deficiency and CLL. I h...

Safta

•8 years ago

5 Replies

Chicago LRF Conference Oct. 28-30

Hi all, If you are planning to attend the LRF (Lymphoma Research Foundation) Conference in Chicago Illinois USA this coming weekend I will be manning the CLL...

Hi all, If you are planning to attend the LRF (Lymphoma Research Foundation) Con...

ThreeWs

•8 years ago

2 Replies

Mumps at 60!!!!!!

Well ya'll-in my most southern drawl! About a week ago I started to have problems with opening and shutting my jaw. Thought it might be TMJ. i now have all...

Well ya'll-in my most southern drawl! About a week ago I started to have problem...

PThomas

•8 years ago

1 Reply

Possible side effects from Ibrutinib & Idelalisib

As Ibrutinib and Idelalisib become more widely used among non CLL Specialists I have some concerns that side effects from both drugs may not be covered...

As Ibrutinib and Idelalisib become more widely used among non CLL Specialists I ...

ThreeWs

•8 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2016

The role of clothing in the spread of hospital acquired infections

How many CLL suffers are Cystic Fibrosis Carriers

Surgery isn’t always the best option, and the decision shouldn’t just lie with the doctor

Obinutuzumab Treatment--What to Expect

CLL Diagnosed by fluke

Goal ticked off!

Cranberries crush bacteria's communication networks

Neutropenia again

Happy day / complete remission

Regular dental check ups linked to significant protection against bacterial pneumonia!

Dr. Andrew Roberts with new data from EHA on Venetoclax used in combination with Rituximab. And my quick visit to San Francisco tomorrow

Hello from Canada

Imbruvica

Any members of tribe CLLers, here?

Huge change in doubling time of WBC

Liver damaged by CLL soon since beginning

London Conference 11 Nov 2016

MY 36 yrs husband is on stage2.

Australian Government has committed to new reforms aimed at streamlining access to medicines including novel and life-saving therapies

Clive James interview on Victoria Derbyshire program

Flu Shot

Symptoms but blood count stable.

I miss OJ

Explainer: how do you get shingles and who should be vaccinated against it?

FCR round 1

Melbourne Australia CLL Education Day - Thurs 10th November, Prof Peter Hillmen from Leeds UK and chairman of BNCI CLL Trials subgroup

G6PD?

Chicago LRF Conference Oct. 28-30

Mumps at 60!!!!!!

Possible side effects from Ibrutinib & Idelalisib

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