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CLL Support

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All posts for February 2020

What is dehydration and Why is it important to know about?

Water is a critical element of the body, and keeping the body adequately hydrated is a must to allow the body to function. Up to 60% of the body's weight is...

Water is a critical element of the body, and keeping the body adequately hydrate...

cllady01

Former Volunteer•4 years ago

1 Reply

Have you experienced occasional difficulty swallowing food while taking Imbruvica?

Swallowing Issues and Imbruvica

lizfuccillo

•4 years ago

15 Replies

DOES ANYONE KNOW THE TOP CLL SPECIALISTS ON LONG ISLAND?

I WOULD GREATLY APPRECIATE YOUR FEEDBACK ON ANY LONG ISLAND DOCTORS WHO SPECIALISE IN CLL☺👨🏿‍⚕️👩‍⚕️. THANK YOU🤗 SO VERY MUCH, YOURS IN HEALTH, 🙋‍♀️...

I WOULD GREATLY APPRECIATE YOUR FEEDBACK ON ANY LONG ISLAND DOCTORS WHO SPECIALI...

debdetermine58

•4 years ago

29 Replies

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Coronavirus (COVID-19) Supply Chain Update - FDA Statement - February 27, 2020

This post is an update to one posted about a month ago suggesting that the spread of the Coronavirus might impact the supply chain for some prescription meds....

This post is an update to one posted about a month ago suggesting that the sprea...

cujoe

•4 years ago

26 Replies

N95 masks

I believe the N95 masks, at least in Ontario I believe are only used by healthcare workers. Don’t see them in stores.

I believe the N95 masks, at least in Ontario I believe are only used by healthca...

Curling123

•4 years ago

36 Replies

Is CLL heredity?

I was diagnosed 8 years aho. Last week my brother told me his wbc was slightly elevated so his doctor is sending him to a hematologist. I was wondering if...

I was diagnosed 8 years aho. Last week my brother told me his wbc was slightly ...

peggyp14

•4 years ago

23 Replies

CLL, leg pains, high colesterol, sweats, exercise isn’t helping anymore 😢

Hi All, I was diagnosed with CLL in 2018. Specialist said it’s a very slow moving strand of leukaemia and I may not even have to have treatment for another...

Hi All, I was diagnosed with CLL in 2018. Specialist said it’s a very slow movin...

Hidden

•4 years ago

10 Replies

No symptoms

Thank you for your replies I was advised by a GP after 2 routine bloodtests that I had CLL I have not had any other more intense bloodtests and certainly have...

Thank you for your replies I was advised by a GP after 2 routine bloodtests that...

Erinway

•4 years ago

2 Replies

Cll

Hi,my dad was detected with CLL I December end,wbc720000,HBO 5.5 .He has undergone 2 chemos of rituximab and endoxon,ie,cyclophosphamide. From today he...

Hi,my dad was detected with CLL I December end,wbc720000,HBO 5.5 .He has underg...

sweetromeet

•4 years ago

2 Replies

Patient and caregiver support and educational forums this Saturday morning in Dallas and next Saturday in NYC

I will be speaking in Dallas this Saturday and the following weekend in NYC at the CLL Society's Saturday morning educational forums. It is not too late to...

I will be speaking in Dallas this Saturday and the following weekend in NYC at t...

bkoffman

CLL CURE Hero•4 years ago

2 Replies

Shingrix vaccine

I had the Shingrix vaccine on Sunday and I have had every side effect fever, rash, flu like symptoms, fatigue, and low blood pressure. Has anyone else have...

I had the Shingrix vaccine on Sunday and I have had every side effect fever, ras...

Smac29

•4 years ago

17 Replies

Productive Cough is Back.

CLLr and have been treated w/BR early last year. I had a persistent cough (productive, white/clear) for months and I blamed it on heart meds. (Which were...

CLLr and have been treated w/BR early last year. I had a persistent cough (pr...

Estate1

•4 years ago

9 Replies

No symptoms

Diagnosed 2 years ago following 2 routine blood tests i.r.o my Coeliac disease which showed my white bloodcell count was going up. Had a other coeliac blood...

Diagnosed 2 years ago following 2 routine blood tests i.r.o my Coeliac disease w...

Erinway

•4 years ago

5 Replies

Upper respiratory infection for four months

Hi, I have been on W&W for over ten years now. For the past four months I have been suffering from an Upper respiratory infection. After being on four...

Hi, I have been on W&W for over ten years now. For the past four months I have b...

AdaYoung

•4 years ago

6 Replies

Corona Virus and CLL

The virus may be picking up steam in North America now. 83 people quarantined yesterday in Nassau County Long Island New York.

The virus may be picking up steam in North America now. 83 people quarantined ye...

Estate1

•4 years ago

13 Replies

Is mountain climbing to 14,500 ft unwise for CLL survivor with low platelets?

I am considering a climb to the top of Mt. Whitney which is 14,500 ft. Are there reasons such as low platelet count and other CLL related factors that make...

I am considering a climb to the top of Mt. Whitney which is 14,500 ft. Are ther...

Hidden

•4 years ago

15 Replies

Bloodwork on imbruvica

Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month......

Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three m...

littledab

•4 years ago

41 Replies

Stomach pain

Hi I have other illnesses as well as CLL been told for years I have IBS although there is no specific test to confirm this, for the past around 6months I have...

Hi I have other illnesses as well as CLL been told for years I have IBS although...

Shelling

•4 years ago

11 Replies

USA — Typical patient costs - CLL

How can I determine what my out-of-pocket treatment cost will be? Are treatment plans a package deal — all-inclusive or à la cart?

How can I determine what my out-of-pocket treatment cost will be? Are treatment ...

KLW4025

•4 years ago

8 Replies

Questions about Richter Syndrome

Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you...

Hi. I would like to ask you some important questions. 1-Before being diagnosed w...

Priss69

•4 years ago

14 Replies

Verapamil and Acalabrutinib

Do not even think of trying to use them both at the same time .. it is almost midnight and I just finished looking up interactions , now I can sleep better...

Do not even think of trying to use them both at the same time .. it is almost mi...

fish61

•4 years ago

8 Replies

Taking venetoclax and having a difficult time

I took imbruvica for 3 years and it stopped working. They started me on venetoclax and ramped it up to 50. My counts got so bad the doctor has temporary taken...

I took imbruvica for 3 years and it stopped working. They started me on venetocl...

Jamstev71

•4 years ago

34 Replies

Acid reflux and CLL

Is acid reflux common in people with CLL? I’ve been having it for about 4 weeks. I saw my primary doctor and she prescribed Prilosec 40 for 2 weeks. It’s...

Is acid reflux common in people with CLL? I’ve been having it for about 4 weeks....

Smac29

•4 years ago

52 Replies

More information about Minimal Residual Disease (MRD) in Chronic Lymphocytic Leukemia.

Aug 2019 This complex, technical but fascinating paper discusses the standardized and new innovative technical approaches for MRD detection in CLL, the...

Aug 2019 This complex, technical but fascinating paper discusses the standardize...

Jm954

Administrator•4 years ago

2 Replies

Richter Transformation Survival in CLL Appears Better Among Treatment-Naive

A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was...

A new nationwide study showed that the 5-year cumulative incidence of Richter tr...

Jm954

Administrator•4 years ago

16 Replies

Input requested re: high lymphocyte, low ANC experience?

Hi - Thanks in advance for reading my post. I had my routine CBC performed and my WBC came in low @ 3.3. The differential shows my lymphocyte count at 48.3%,...

Hi - Thanks in advance for reading my post. I had my routine CBC performed and m...

lou7203

•4 years ago

18 Replies

DAILY MED

DAILY MED site provides very detailed information about the effects and complications related to medications,

DAILY MED site provides very detailed information about the effects and complica...

vog292

•4 years ago

1 Reply

Dr. Mato on Sequencing and what is CLLAN

Hi, We have so many great drugs to treat CLL. How to sequence them is unclear, but Dr. Mato presents some reassuring data that when we use venetoclax, namely...

Hi, We have so many great drugs to treat CLL. How to sequence them is unclear, b...

bkoffman

CLL CURE Hero•4 years ago

6 Replies

CLL Treatment Advice/Recommendations/Etc For Newbie

After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am...

After monitoring for 1 year, my doc has recommended that I participate in Trial ...

username-the-dude

•4 years ago

15 Replies

Vancomycin for C-diff..

I've taken vancomycin for c-diff for 15 days and dock say more tapering down. Don't think he realizes the CLL factor, though I told him... I'm so afraid of...

I've taken vancomycin for c-diff for 15 days and dock say more tapering down. Do...

Butitisme

•4 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2020

What is dehydration and Why is it important to know about?

Have you experienced occasional difficulty swallowing food while taking Imbruvica?

DOES ANYONE KNOW THE TOP CLL SPECIALISTS ON LONG ISLAND?

Coronavirus (COVID-19) Supply Chain Update - FDA Statement - February 27, 2020

N95 masks

Is CLL heredity?

CLL, leg pains, high colesterol, sweats, exercise isn’t helping anymore 😢

No symptoms

Cll

Patient and caregiver support and educational forums this Saturday morning in Dallas and next Saturday in NYC

Shingrix vaccine

Productive Cough is Back.

No symptoms

Upper respiratory infection for four months

Corona Virus and CLL

Is mountain climbing to 14,500 ft unwise for CLL survivor with low platelets?

Bloodwork on imbruvica

Stomach pain

USA — Typical patient costs - CLL

Questions about Richter Syndrome

Verapamil and Acalabrutinib

Taking venetoclax and having a difficult time

Acid reflux and CLL

More information about Minimal Residual Disease (MRD) in Chronic Lymphocytic Leukemia.

Richter Transformation Survival in CLL Appears Better Among Treatment-Naive

Input requested re: high lymphocyte, low ANC experience?

DAILY MED

Dr. Mato on Sequencing and what is CLLAN

CLL Treatment Advice/Recommendations/Etc For Newbie

Vancomycin for C-diff..

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