Posts - CLL Support | HealthUnlocked

CLL Support

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All posts for July 2016

Deleted accounts!

I would really appreciate it if 'the power's that be' DO NOT delete my account, again! I would like to know why this was done! While I appreciate the people...

I would really appreciate it if 'the power's that be' DO NOT delete my account, ...

Hidden

•8 years ago

10 Replies

Posts/replies with political references will be edited/deleted at the administrators' discretion

As the USA draws ever closer to deciding on their new president, the administrators are seeing more submissions referencing the remaining two candidates....

As the USA draws ever closer to deciding on their new president, the administrat...

AussieNeil

Administrator•8 years ago

10 Replies

Doc says it's usual to start treatment with doubling of WCC

Hi I'm new here. Diagnosed Nov 2014 at age 47. I was starting a round the world trip with my wife in our yacht from Australia. We pondered the diagnosis for a...

Hi I'm new here. Diagnosed Nov 2014 at age 47. I was starting a round the world ...

catnapcrew

•8 years ago

27 Replies

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Unexplained bruising?

Hi! I was diagnosed with CLL 12 weeks ago after I'd asked for a blood test to see if there was a reason for my lack of energy. I am now on W and W and 6...

Hi! I was diagnosed with CLL 12 weeks ago after I'd asked for a blood test to se...

Saska-Jul31

•8 years ago

36 Replies

FCR-neutrophils

Hi All, I've just finished 6 rounds of FCR, last infusion 2 weeks ago 13th July.I have been hospitalised twice during rounds 3 and 4 with neutropenic sepsis...

Hi All, I've just finished 6 rounds of FCR, last infusion 2 weeks ago 13th July....

jackhammer

•8 years ago

16 Replies

2+ years on Ibrutinib and a question

I was diagnosed with CLL 15 years ago at age 49. Four years later I developed a Richter's transformation (Hodgkins) that was successfully treated. My early...

I was diagnosed with CLL 15 years ago at age 49. Four years later I developed a ...

andrew1

•8 years ago

18 Replies

Re: Extremely High White Blood Cell Counts (Over 150,000)

Hello, All! I am new. I am here for my dearest brother who was diagnosed with CLL a few years back. His WBC is now so high that a hospital has to read the...

Hello, All! I am new. I am here for my dearest brother who was diagnosed with ...

nicesmilegal

•8 years ago

33 Replies

Ibrutinib, idelalisib, venetoclax provide ‘very exciting developments’ in CLL - Dr Kanti Rai

Just in case you haven't heard the news, 'There have been “very exciting” developments over the last decade in the treatment of CLL, Dr Kanti Rai (of...

Just in case you haven't heard the news, 'There have been “very exciting” develo...

AussieNeil

Administrator•8 years ago

1 Reply

NHS England refusing second Stem Cell Transplants

Hi everybody not many of you will know yet but NHS England at the being of July issued an edict proclaiming that they would Not routinely Pay for a Second Stem...

Hi everybody not many of you will know yet but NHS England at the being of July ...

bronx77

•8 years ago

3 Replies

Imbruvica side effects

Hello everyone, my father is CLL survivor for almost 20 years, he used so many drugs but relaps duration is now under 1 year. Our last drug is Imbruvica, he...

Hello everyone, my father is CLL survivor for almost 20 years, he used so many d...

chimini

•8 years ago

3 Replies

Health Check: what your pee and poo colour says about your health

Think you might have strange pee or poo colours due to food, drugs or disease? Then have a read of this article by Clare Collins, Professor in Nutrition and...

Think you might have strange pee or poo colours due to food, drugs or disease? ...

AussieNeil

Administrator•8 years ago

3 Replies

Microneedle painlessly monitors drug levels without the need to draw blood

'Microneedle technology has been around for years, and we've seen vaccines and medication administered via the technique, which uses tiny needles to break...

'Microneedle technology has been around for years, and we've seen vaccines and m...

AussieNeil

Administrator•8 years ago

1 Reply

SEEING HAEMATOLOGIST SATURDAY

Hi I went to my GP and she didn't know what the swelling and lumps are ☺ I'm a little confused as to what to tell the Haematologist on Saturday about...

Hi I went to my GP and she didn't know what the swelling and lumps are ☺ I'm...

sassysuz56

•8 years ago

5 Replies

Imbruvica and tart cherry capsules, or Arnica Montana for pain?

Does anyone know of any interactions between Imbruvica and tart cherry capules, or Imbruvica and Arnica Montana. Tylenol is doing nothing to relieve any type...

Does anyone know of any interactions between Imbruvica and tart cherry capules, ...

Hidden

•8 years ago

7 Replies

Imbruvica and elevated liver enzymes???

I am starting my 3rd month of imbruvica and up until now it has been going great. They called yesterday after my bloodwork and my liver enzymes are elevated....

I am starting my 3rd month of imbruvica and up until now it has been going great...

Rookie

•8 years ago

12 Replies

Idelalisib given front-line for treatment of chronic lymphocytic leukemia causes frequent immune-mediated hepatotoxicity

Key Points Idelalisib as upfront therapy for CLL caused an early hepatotoxicity in a subset of primarily younger patients with IGHV-mutated disease....

Key Points Idelalisib as upfront therapy for CLL caused an early hepatotoxicit...

Cllcanada

Help....

Hi everyone my mum has just been given the news that she has Cll with 17p deletion and itp which is not so good, she had been told that she was to be started...

Hi everyone my mum has just been given the news that she has Cll with 17p deleti...

Laurag78

•8 years ago

11 Replies

Lymphoma

I was in a car accident coming up to 3 months ago, a few days later I woke up and my vision was blurry. I went to the opticians and then the hospital who told...

I was in a car accident coming up to 3 months ago, a few days later I woke up an...

HANNAHEWEBB

•8 years ago

23 Replies

Tender lymph node?

For four days so far the right side of my neck next to my throat but not in it has hurt. When I swallow or laugh or move in a certain way. I'm seeing doctor...

For four days so far the right side of my neck next to my throat but not in it h...

Corin850

•8 years ago

2 Replies

Synthroid &CLL

Hello All Ive been in stage 0 with numbers climbing slowly. Anyone taking med for thyroid? Ive been on synthroid for more than 30 yrs. Wondering about...

Hello All Ive been in stage 0 with numbers climbing slowly. Anyone taking med fo...

Minda1941

•8 years ago

17 Replies

BLood results and should I go away for a few days? Advice needed!!!!

Hi! I'm fine in myself but been for bloods and they weren't too happy..said immune system compromised... Hb - 8.6 Wbc -1.15 Plts- .151 Neuts - o.58 Was going...

Hi! I'm fine in myself but been for bloods and they weren't too happy..said immu...

Bethan49

•8 years ago

24 Replies

21 July

Had my first visit to haematologist today glad it's done, stage a - so far so good. Blood taken and xray done scan tbc and future appointment in four months...

Had my first visit to haematologist today glad it's done, stage a - so far so go...

Denyer

•8 years ago

5 Replies

Researchers Identify Brain Circuits That Help People Cope With Stress 07/19/2016

https://www.nih.gov/news-events/researchers-identify-brain-circuits-help-people-cope-stress

https://www.nih.gov/news-events/researchers-identify-brain-circuits-help-people-...

SouthFloridaLady

•8 years ago

1 Reply

Vitamin D

Over the past few years the subject of Vitamin D has come up here on a number of occassions. I saw this earlier this morning and thought it might be worth...

Over the past few years the subject of Vitamin D has come up here on a number of...

Oleboyredw-uk

•8 years ago

4 Replies

Mamajama

Hello, diagnosed in Oct. Of 2015. my prognosis is in the 33% that may never be treated. even so I do have a small swelling of a node at the back of the...

Hello, diagnosed in Oct. Of 2015. my prognosis is in the 33% that may never be ...

mamajama

•8 years ago

7 Replies

The unspeakable side effects of a bit of chemo ( bums and faries)

Well, what can I say... Recovering well from the trauma of the first round of FCR BUT now learning that it's not all plain sailing... Having had the most...

Well, what can I say... Recovering well from the trauma of the first round of F...

Bethan49

•8 years ago

20 Replies

Anybody 13q deleted and unmutaded

That's what we know so far about my husband's CLL ,diagnosed 2.5 years ago. Thanks,Ileana

That's what we know so far about my husband's CLL ,diagnosed 2.5 years ago. Tha...

ikahan

•8 years ago

3 Replies

Coping With a CLL Diagnosis

Interview with Tina Sapienza, LMSW, OSW-C, Oncology Social Worker Columbia University Medical Center and Nicole Lamanna, MD, Associate Clinical Professor of...

Interview with Tina Sapienza, LMSW, OSW-C, Oncology Social Worker Columbia Unive...

krayburn

•8 years ago

10 Replies

I'm trying to find out more about the connection of the Spleen and CLL.

I was diagnosed with CLL in 2015. After six months chemo treatments, I am now on a three month check-up schedule. My labs seem to be good at this time. The...

I was diagnosed with CLL in 2015. After six months chemo treatments, I am now on...

fayeander

•8 years ago

6 Replies

diagnosed in January

Good day all, I was Dx in January after routine blood tests just most here I suspect. It was like a freight train had hit me and all I could do was wallow in...

Good day all, I was Dx in January after routine blood tests just most here I sus...

garrick66

•8 years ago

18 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2016

Deleted accounts!

Posts/replies with political references will be edited/deleted at the administrators' discretion

Doc says it's usual to start treatment with doubling of WCC

Unexplained bruising?

FCR-neutrophils

2+ years on Ibrutinib and a question

Re: Extremely High White Blood Cell Counts (Over 150,000)

Ibrutinib, idelalisib, venetoclax provide ‘very exciting developments’ in CLL - Dr Kanti Rai

NHS England refusing second Stem Cell Transplants

Imbruvica side effects

Health Check: what your pee and poo colour says about your health

Microneedle painlessly monitors drug levels without the need to draw blood

SEEING HAEMATOLOGIST SATURDAY

Imbruvica and tart cherry capsules, or Arnica Montana for pain?

Imbruvica and elevated liver enzymes???

Idelalisib given front-line for treatment of chronic lymphocytic leukemia causes frequent immune-mediated hepatotoxicity

Help....

Lymphoma

Tender lymph node?

Synthroid &CLL

BLood results and should I go away for a few days? Advice needed!!!!

21 July

Researchers Identify Brain Circuits That Help People Cope With Stress 07/19/2016

Vitamin D

Mamajama

The unspeakable side effects of a bit of chemo ( bums and faries)

Anybody 13q deleted and unmutaded

Coping With a CLL Diagnosis

I'm trying to find out more about the connection of the Spleen and CLL.

diagnosed in January

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