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CLL Support

23,337 members•40,046 posts

All posts for December 2020

Good end to a bad year... My MRD Results are in!

As many of you know, I enrolled in a clinical trial for experimental treatment with the goal to reduce MRD to zero. (Minimal (or Measurable) residual disease...

As many of you know, I enrolled in a clinical trial for experimental treatment w...

MikeHoff

•4 years ago

22 Replies

Happy new year family

Happy new year family. May this year be better for everyone.

Priss69

•4 years ago

13 Replies

COVID-19 Vaccinations Opinion from Dr. R. Furman MD (cross posted from CLLSLL@groups.io with his permission )

From: Rick Furman Date: December 31, 2020 at 1:05:19 PM EST To: CLLSLL@groups.io Subject: [CLLSLL] COVID-19 Vaccinations I have been inundated with emails...

From: Rick Furman Date: December 31, 2020 at 1:05:19 PM EST To: CLLSLL@groups....

lankisterguy

Volunteer•4 years ago

30 Replies

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Covid stepped on to the express train

Just got home from work and just seen today's figures 55,000 positive cases and a further 964 deaths so so sad , this following yesterday's figures of 981...

Just got home from work and just seen today's figures 55,000 positive cases and...

stewie

•4 years ago

6 Replies

UK's Covid vaccination programme changed, doctors' union unhappy

Today's lunchtime news on BBC radio 4 reported that the BMA, which represents the majority of the country's GPs, has criticised the decision to extend the time...

Today's lunchtime news on BBC radio 4 reported that the BMA, which represents th...

bennevisplace

•4 years ago

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Food for Thought as we Approach 2021

Barely the day started and…it’s already six in the evening. Barely arrived on Monday and its already Friday. …and the month is already over …and the year...

Barely the day started and…it’s already six in the evening. Barely arrived on ...

Loweez

•4 years ago

15 Replies

UK MHRA regulators have approved a second vaccine - the Oxford vaccine

Just a few minutes ago in the UK we heard the news that the Oxford vaccine has been approved for use and will start to be used next week. From the BBC website...

Just a few minutes ago in the UK we heard the news that the Oxford vaccine has b...

Jm954

Administrator•4 years ago

43 Replies

Imbruvca and covid vaccines

Dear all, does anyone know whether the imbruvica treatment for CLL allows for taking the covid vaccine? If yes, which one, Pfiser, Moderna, Oxford? Thank you

Dear all, does anyone know whether the imbruvica treatment for CLL allows for ta...

Ivaylo

•4 years ago

13 Replies

Moderna vaccine

Had my first Moderna vaccine today. Called my Oncologist up before I had and he said no problem. The biggest hospital system in Colorado is UC Health which...

Had my first Moderna vaccine today. Called my Oncologist up before I had and he ...

Stevevolo

•4 years ago

9 Replies

Does anybody got the Covid vaccine while on Calquence?

I am taking Calquence for more than 3 months now and wanted to know if the vaccine have side effects to CLL patients. My oncologist advised me to get it next...

I am taking Calquence for more than 3 months now and wanted to know if the vacci...

zitchie

•4 years ago

6 Replies

Imbruvica withdrawl symptoms?

Imbruvica withdrawal symptoms? I have been instructed to come off my Imbruvica due to some issues I was having bleeding tongue, burning sensation in my throat...

Imbruvica withdrawal symptoms? I have been instructed to come off my Imbruvica d...

Lancerlady

•4 years ago

11 Replies

Lower BACK pain

Hi, does anyone have power back pain that goes right across the lower back in the hips around the flanks, up the spine? Some days struggle to stand up

Hi, does anyone have power back pain that goes right across the lower back in th...

1984jfk

•4 years ago

4 Replies

Urgent Message from Dr. Brian Koffman: Stop the spread of COVID-19!

Urgent Message from Dr. Brian Koffman: Stop the spread of COVID-19! Give your family and friends the best gift: With vaccines on the horizon, let’s not blow...

Urgent Message from Dr. Brian Koffman: Stop the spread of COVID-19! Give your ...

bkoffman

CLL CURE Hero•4 years ago

6 Replies

Has anyone been prescribed and started Acalabrutinib and venetoclax treatment in U.K. in 2020

I have been told I am ready to start treatment but it has been deferred because of the Covid 19 status in the UK hospital where I go to see my haematologist...

I have been told I am ready to start treatment but it has been deferred because...

Tupence

•4 years ago

11 Replies

Flu or Covid symptoms UK

Hi all, Andrew was confirmed as having Covid too. His results came relatively quickly. I'm not feeling too great. Phoned 111 last night. A few hours later a...

Hi all, Andrew was confirmed as having Covid too. His results came relatively qu...

BellaBee10

•4 years ago

70 Replies

Cold Water Swimming!

Hi. I’ve recently taken up cold water swimming or wild water swimming as some call it. Recently it's been given quite a lot of "air time" on the TV and Radio...

Hi. I’ve recently taken up cold water swimming or wild water swimming as some ca...

Someca

•4 years ago

10 Replies

Side effects of venetoclax combined with obinutuzumab

Hi, I live in the UK and am eligible for venetoclax combined with obinutuzumab as first line treatment. I have been on W&W for about 4 years and now as my...

Hi, I live in the UK and am eligible for venetoclax combined with obinutuzumab ...

Leilalala

•4 years ago

29 Replies

Terrible pimply rash whilst on Ibrutinib

Dear All, I wonder whether anyone can give me advice on a problem I am having with a side effect of taking Ibrutinib. I started taking Ibrutinib early August...

Dear All, I wonder whether anyone can give me advice on a problem I am having wi...

Provence

•4 years ago

13 Replies

CLL and Roundup lawsuit

For those living in the U.S. there's a time sensitive deadline—12/31/2020, I think—to initiate a new legal action brewing against the makers of Roundup for...

For those living in the U.S. there's a time sensitive deadline—12/31/2020, I thi...

Pogee

•4 years ago

2 Replies

Aged 37 - New CLL diagnosis - any advice on tiredness and exercise appreciated

Hey, I have recently been diagnosed with CLL and have discovered this great forum during my initial research. I am fortunately on watch and wait for now. I...

Hey, I have recently been diagnosed with CLL and have discovered this great foru...

Our_wes123

•4 years ago

46 Replies

New Guy Hoping for some answers!

Hi Everyone. This is my first post having just discovered the site which is excellent. I was diagnosed mid Nov with CLL following a routine blood test for...

Hi Everyone. This is my first post having just discovered the site which is exce...

prbs2707

•4 years ago

30 Replies

Happy but stressful Christmas

Happy to have seen all my grandchildren, but it had to be a quick outdoor gift exchange. With 9 grandkids and 5 great grandkids, “quick” was a stress. No one...

Happy to have seen all my grandchildren, but it had to be a quick outdoor gift e...

Phil4-13

•4 years ago

8 Replies

Why the Weight Loss?

Hello, does anyone have information if CLL can cause dramatic weight loss? I have CLL and have lost about 14 lbs in the last six months without trying. Thank...

Hello, does anyone have information if CLL can cause dramatic weight loss? I ha...

napa

•4 years ago

11 Replies

Good News for Xmas Day! Scientists trial drug to prevent infection that leads to Covid.

Antibody therapy could confer instant immunity. People living in households where someone has caught Covid could be injected with the drug to ensure they do...

Antibody therapy could confer instant immunity. People living in households wher...

Harvist

•4 years ago

5 Replies

COVID-19 vaccine

I have CLL and I am taking imbruvica, should I have the vaccine?

Macronas

•4 years ago

9 Replies

Happy Christmas

Happy Christmas & a safe covid free new year

fapumpkin

•4 years ago

6 Replies

Christmas wishes from Cork Ireland

Wishing all a very happy Christmas and hopefully meet year will bring us better health. Thanks for all your support and prayers when I was given a year to live...

Wishing all a very happy Christmas and hopefully meet year will bring us better ...

Caoimh37

•4 years ago

28 Replies

unmutated

hi all merry christmas iam not getting much response unmutated cll folk on this site is there only 4 just like to learn a bit more on the subject thats all...

hi all merry christmas iam not getting much response unmutated cll folk on this ...

kel555

•4 years ago

38 Replies

Covid Vaccine with CLL?

I have been on CLL W & W for 10 years although my WBC is rising steadily again. Are there any contra-indications to me having the COVID-19 vaccine?

I have been on CLL W & W for 10 years although my WBC is rising steadily again. ...

tyke3poppy4

•4 years ago

3 Replies

Merry Christmas family.

Merry Christmas family. May this year give us health and next year we all be healthy. Much Health and Peace to all.

Merry Christmas family. May this year give us health and next year we all be hea...

Priss69

•4 years ago

11 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2020

Good end to a bad year... My MRD Results are in!

Happy new year family

COVID-19 Vaccinations Opinion from Dr. R. Furman MD (cross posted from CLLSLL@groups.io with his permission )

Covid stepped on to the express train

UK's Covid vaccination programme changed, doctors' union unhappy

Food for Thought as we Approach 2021

UK MHRA regulators have approved a second vaccine - the Oxford vaccine

Imbruvca and covid vaccines

Moderna vaccine

Does anybody got the Covid vaccine while on Calquence?

Imbruvica withdrawl symptoms?

Lower BACK pain

Urgent Message from Dr. Brian Koffman: Stop the spread of COVID-19!

Has anyone been prescribed and started Acalabrutinib and venetoclax treatment in U.K. in 2020

Flu or Covid symptoms UK

Cold Water Swimming!

Side effects of venetoclax combined with obinutuzumab

Terrible pimply rash whilst on Ibrutinib

CLL and Roundup lawsuit

Aged 37 - New CLL diagnosis - any advice on tiredness and exercise appreciated

New Guy Hoping for some answers!

Happy but stressful Christmas

Why the Weight Loss?

Good News for Xmas Day! Scientists trial drug to prevent infection that leads to Covid.

COVID-19 vaccine

Happy Christmas

Christmas wishes from Cork Ireland

unmutated

Covid Vaccine with CLL?

Merry Christmas family.

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