Posts - CLL Support | HealthUnlocked

Hi there everyone im not well at the moment im getting sick of feeling sick with cll I no ive given advice but feel like a hipocrit ive seen my oncologist he...

feeling down and sick

Hi there everyone im not well at the moment im getting sick of feeling sick with...

piere1

•9 years ago

13 Replies

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(UK) OPAAL & Macmillan - CANCER, OLDER PEOPLE AND ADVOCACY PROGRAMME

This new film talks about the volunteer peer advocacy scheme set up by OPAAL and Macmillan to support older people affected by cancer. The average age of CLL...

This new film talks about the volunteer peer advocacy scheme set up by OPAAL and...

HAIRBEAR_UK

Founder Admin•9 years ago

Friends, I warned you that it was going to be fast and furious with updates and interesting and important new material on our website: http://cllsociety.org....

The Role of the Patient Advocate in CLL Trials

Friends, I warned you that it was going to be fast and furious with updates and...

bkoffman

CLL CURE Hero•9 years ago

"AbbVie (NYSE: ABBV), a global biopharmaceutical company, announced today that IMBRUVICA® (ibrutinib) was awarded the prestigious Prix Galien 2015 Award for...

IMBRUVICA® (ibrutinib) Awarded Prix Galien 2015 Best Pharmaceutical Agent

"AbbVie (NYSE: ABBV), a global biopharmaceutical company, announced today that I...

Administrator•9 years ago

I've been told of a new drug from the states that supports your adrenal function ( declines with age) and really helps with fatigue and low mood ...... Anyone...

DHEA...... Anti ageing

I've been told of a new drug from the states that supports your adrenal function...

Decodes

•9 years ago

4 Replies

PaulaS - update for friends

Just back from visiting Paula. She and I have been very touched by all your comments on the earlier thread. Thank you so, so much for those and for all the...

Just back from visiting Paula. She and I have been very touched by all your comm...

PeterMasih

•9 years ago

52 Replies

How changes in weather affect our health

After a diagnosis of CLL, we become much more aware of every little change in our health, wondering whether our CLL has suddenly become more active. The...

After a diagnosis of CLL, we become much more aware of every little change in ou...

Administrator•9 years ago

NICE published Final Guidance today on Idelalisib for treating chronic lymphocytic leukaemia NICE technology appraisal guidance [TA359]...

NICE publish final guidance for idelalisib to treat CLL, moving England and Wales NHS access closer

NICE published Final Guidance today on Idelalisib for treating chronic lymphocyt...

HAIRBEAR_UK

Founder Admin•9 years ago

Hello Dear Support Group, I had intense FDR in 2010, had to stop because of toxicity. I did not loose my hair, but my hemotologist told me I would. Is it...

Fdr hair loss and remission times

Hello Dear Support Group, I had intense FDR in 2010, had to stop because of toxi...

Kimsome

•9 years ago

5 Replies

Keeping yourself and others safe on HealthUnlocked - Reporting Posts and Private Messages (Chat)

To Report inappropriate Private Messages, posts or replies, just select 'Report' at the bottom right of the PM, post or reply. Please...

To Report inappropriate Private Messages, posts or replies, just select 'Report'...

I am ten weeks into the clinical trial with ACP-196 and all is going well. My white count rose and peaked at about day 60 and has decreased 25% to today (day...

Administrator•9 years ago

9 Replies

Variability in platelet count

I am ten weeks into the clinical trial with ACP-196 and all is going well. My w...

Ramses

•9 years ago

Processed meat (meat cured, smoked or similarly treated to enhance preservation and/or flavour, which includes ham, bacon, frankfurts, salami, and the like)...

WHO classifies Processed Meat Consumption within Group 1 – alongside known carcinogens including asbestos, tobacco, arsenic and alcohol

Processed meat (meat cured, smoked or similarly treated to enhance preservation ...

Administrator•9 years ago

Due to my 17p deletion, my doctor started Imbruvica 4 months ago. My CT this week has shown marked improvement from the last one, my lymph nodes greatly...

Marked improvement on Imbruvica

Due to my 17p deletion, my doctor started Imbruvica 4 months ago. My CT this w...

scorpio74944

•9 years ago

14 Replies

Starting on Ibrutinib after Idealisib complications.

My husband was on Idealisib for 8 months with very good results, but in that 8th month he developed colitis. He was put on a steroid for 30 days and colitis...

My husband was on Idealisib for 8 months with very good results, but in that 8th...

Sjustus

•9 years ago

10 Replies

Cellular Immunity and 3 Novel Clinical Trials that Harness the Power of the Immune System

Friends, Today on the CLL Society website we share two interesting articles: 1. An interview with Dr. John Gribben whom I interviewed at the CRC (CLL...

Friends, Today on the CLL Society website we share two interesting articles: ...

bkoffman

CLL CURE Hero•9 years ago

My platelet count is 176000. My doctor told me that i had low platelet count and he gave me medications. Next day my platelet count reduced to 138000 and then...

Low platelet count

My platelet count is 176000. My doctor told me that i had low platelet count and...

Prachee

•9 years ago

6 Replies

Relapsed CLL

Hello! I was initially diagnosed in 2006. Stage 4. After 8 doses of Rituximab, I have been m in remission...and have remained in total remission--- until...

Hello! I was initially diagnosed in 2006. Stage 4. After 8 doses of Rituximab...

P-klenclo

•9 years ago

9 Replies

Weight loss.

I was about 20-25 overweight. I gained most of it in the past 2 years. In 2011 I had emergency bypass surgery. My two main arteries were blocked 99%. I made it...

I was about 20-25 overweight. I gained most of it in the past 2 years. In 2011 I...

meemsdream

•9 years ago

19 Replies

MDS World Awareness Day today 25th October 2015

Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information...

Thought you may be interested. MDS is a rare bone marrow disease which is only c...

Gforce1

•9 years ago

3 Replies

PaulaS - news for friends

It's Paula's husband here. I'd just like to give you an update on Paula. - A week ago Idelalisib was withdrawn because of worsening rash. - 2 days later she...

It's Paula's husband here. I'd just like to give you an update on Paula. - A we...

PeterMasih

•9 years ago

84 Replies

How Big Data is Helping Unravel CLL Mysteries.

Friends, Today on the CLL Society website http://cllsociety.org, we share an interview with another researcher from Ohio State University, Dr. Philip Payne,...

Friends, Today on the CLL Society website http://cllsociety.org, we share an in...

bkoffman

CLL CURE Hero•9 years ago

I am currently on my 4th month of taking Imbruvica. I have recently noticed that I get muscle cramps a lot more frequently than I ever did before. Mostly in...

Muscle cramps on Imbruvica

I am currently on my 4th month of taking Imbruvica. I have recently noticed tha...

scorpio74944

•9 years ago

52 Replies

Pneu-C-13 and Flu Shot timing?

I'm getting the pneumococcal conjugate vaccine (PCV13) tomorrow. I have Cll stage 0, no symptoms. Just wondering if anyone knows how long a person needs to...

I'm getting the pneumococcal conjugate vaccine (PCV13) tomorrow. I have Cll stag...

efun

•9 years ago

12 Replies

The Kavli HUMAN Project aims to track the health of 10,000 New Yorkers for the next 20 years...

"The Kavli HUMAN Project, will track every last scrap of data generated by 10,000 New Yorkers. Taken together, that data will weave a detailed narrative of...

"The Kavli HUMAN Project, will track every last scrap of data generated by 10,00...

Administrator•9 years ago

Scientists Can Now Make Leukemia Cells Kill Each Other October 21, 2015 | by Robin Andrews Iflscience .com Leukemia, a group of cancers affecting the bone...

Good news

Scientists Can Now Make Leukemia Cells Kill Each Other October 21, 2015 | by Rob...

ava1967ir

•9 years ago

4 Replies

How 3D bar codes might soon prove your antiretroviral drugs and anti-cancer drugs are authentic

"It is estimated that about fifty per cent of pharmaceuticals bought online are fake. It ranges from anti cancer drugs, aspirin, to Viagra. Car parts is...

"It is estimated that about fifty per cent of pharmaceuticals bought online are ...

Administrator•9 years ago

I finished BR treatment in August, following five years of W&W. I tolerated the treatment easily and it yielded great results: my blood counts are shockingly...

"Partial" Remission?

I finished BR treatment in August, following five years of W&W. I tolerated the...

Eagle5327

•9 years ago

6 Replies

Dr. Shpall on Therapeutic Agents for the Treatment of CLL

Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem Cell Transplantation, Division of Cancer Medicine, medical director, Cell...

Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem...

Justasheet1

•9 years ago