Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,045 posts

All posts for July 2021

Two Articles Published This Month

COVID Vaccines and CLL...

Luap001

•3 years ago

1 Reply

Mouth sores

To any of you dealing with mouth sores I had them in the very beginning. My oncologist sent me to an ENT and he gave me a script for magic mouthwash to use...

To any of you dealing with mouth sores I had them in the very beginning. My onco...

Lizshanti

•3 years ago

16 Replies

Update to "Feeling Terrible Lately".

Hello all, Well the reason I felt so terrible was because I ended up having Lyme disease.. I ended up seeing my family Dr. as I was starting to feel bad again....

Hello all, Well the reason I felt so terrible was because I ended up having Lyme...

fxdx1

•3 years ago

2 Replies

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CLL Transform to Lymphoma?

My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with...

My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have...

cll2013

•3 years ago

6 Replies

Shingrix OK For Immunocompromised Adults

This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 Re:...

This article was posted today on CLLSLL groups.io and is reposted here with perm...

lankisterguy

Volunteer•3 years ago

11 Replies

Early detection of COVID-19 in the UK using self-reported symptoms:a large-scale, prospective, epidemiological surveillance study-The Lancet

Below makes interesting reading and points out that the current UK Government guidelines on the first Covid - 19 ‘warning’ signs / symptoms to be aware of...

Below makes interesting reading and points out that the current UK Government gu...

Juliette02

•3 years ago

3 Replies

protection for untreated vs treated cll people

I have read the untreated cll people have a better chance of being protected by the covid vaccines yet now I see that some are saying the opposite...that...

I have read the untreated cll people have a better chance of being protected by ...

Lindaan

•3 years ago

8 Replies

Stemcell transplant or not, that is the question?

Hi everyone, I am 41 and was diagnosed with CLL 4 years ago. I am now on the third line of treatment and my hematologist is recommending a stemcell...

Hi everyone, I am 41 and was diagnosed with CLL 4 years ago. I am now on the thi...

Chpot

•3 years ago

15 Replies

Preventive monoclonal antibodies

I got this information from someone and thought others would be interested: There is an FDA website on which one can write to the FDA about approving use of...

I got this information from someone and thought others would be interested: Ther...

krperez

•3 years ago

5 Replies

Antibodies test

Hi all, Please could someone help with my test. Appreciate your support. Ana

ANA4

•3 years ago

10 Replies

Treatment advised (after 21 years w & w)

I am 66 year old male Royal Marsden patient UK. Treatment has been advised (which has come as a big shock to me as it has never mentioned before) mostly...

I am 66 year old male Royal Marsden patient UK. Treatment has been advised (whic...

ornstin

•3 years ago

34 Replies

Suspending Ibrutinib

I am in the UK and Ipresently take Ibrutinib and Venetoclax as treatment for CLL however I have received a call from my hematologist saying that because I am...

I am in the UK and Ipresently take Ibrutinib and Venetoclax as treatment for CLL...

GreyB

•3 years ago

13 Replies

Sleep Apnea

Hi. Any CLL peeps out there with swollen tonsils have to do the CPAP machine or mouth gear for apnea? I am feeling out options and both seem to stink to me....

Hi. Any CLL peeps out there with swollen tonsils have to do the CPAP machine or...

Gardengirl44

•3 years ago

25 Replies

New research on 400 CLL patients show which factors determine positive response to mRNA Covid-19 vaccine:

Link to the paper: https://haematologica.org/article/view/haematol.2021.279196

RamOren

•3 years ago

4 Replies

All over bar the shouting, or shouting all over the bar?

The BBC yesterday reported that the daily number of Covid cases recorded in the UK had fallen for a seventh day in a row, to 23,511...

The BBC yesterday reported that the daily number of Covid cases recorded in the ...

bennevisplace

•3 years ago

8 Replies

Venetoclax

Not sure you would remember but I posted on here just over 2 years ago after a dreadful experience with FCR. My numbers have been steadily going up and it was...

Not sure you would remember but I posted on here just over 2 years ago after a d...

Racing1961

•3 years ago

19 Replies

Can you give somebody Imbruvica for free in USA

I have probably one year supply of Imbruvica that I cannot use. Is there any law or regulations preventing me form giving this to somebody in USA?

I have probably one year supply of Imbruvica that I cannot use. Is there any law...

pragnar

•3 years ago

18 Replies

Nutrition and supplements

Does anyone follow with an integrative oncologist? I am recently diagnosed, not requiring treatment at this time and would like to optimize my health and seek...

Does anyone follow with an integrative oncologist? I am recently diagnosed, not...

peacethruthestorm

•3 years ago

13 Replies

CLL in your skin

Has anyone has CLL show up in their skin? Did it look anything like this? Did it itch? How was it diagnosed? I got this after three days on valacyclovir,...

Has anyone has CLL show up in their skin? Did it look anything like this? Did i...

Cfarrar

•3 years ago

2 Replies

A CLL Patient Story Sprinkled with Shakespeare!

A Patient Story Sprinkled with Shakespeare! Doreen Zetterlund, an actress, long-time CLL patient advocate, and member of a CLL Society Support Group, inspires...

A Patient Story Sprinkled with Shakespeare! Doreen Zetterlund, an actress, long-...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

High neutrophils low lymphocytes low IGg

Hi all, I am 1 year out from treatment of gazyva and venetaclax. My blood work after treatment showed I was MRD negative. I changed insurance companies and I...

Hi all, I am 1 year out from treatment of gazyva and venetaclax. My blood work ...

Downriver555

•3 years ago

6 Replies

Learning opportunity: "Optimizing Decision-Making in CLL in an Era of Novel Agents"/ What doctors are learning about treating CLL

Learning opportunity: Continuing medical education activities are required in order for physicians to maintain licensing. Rarely do we patients get exposure to...

Learning opportunity: Continuing medical education activities are required in or...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

Paying for imbruvia

I started on imbruvia about a month ago, the first month was no cost. My copay here in Alabama will be about 2600$ for a 28 day supply. The Rx found an...

I started on imbruvia about a month ago, the first month was no cost. My copay ...

Ebenezer68

•3 years ago

32 Replies

Vaccines, 3rd dose, LLS results and more

Hi, Things change fast. 1.More data coming that suggests T cells probably will not be rescuing us post vaccine if not antibody (humeral response). No surprise...

Hi, Things change fast. 1.More data coming that suggests T cells probably will n...

bkoffman

CLL CURE Hero•3 years ago

28 Replies

Humoral and cellular responses after a third dose of BNT162b2vaccine in patients with lymphoid malignancies

https://assets.researchsquare.com/files/rs-727941/v1/4e8668e3-2c97-4a91-8334-dd0258b8e2ed.pdf Daniel Re, Centre Hospitalier, Antibes et al "CONCLUSIONS Dose 3...

https://assets.researchsquare.com/files/rs-727941/v1/4e8668e3-2c97-4a91-8334-dd0...

JIDD

•3 years ago

5 Replies

CDC report of 07-22

This was just published by the CDC a few days ago. It is about the inmunocompromised population and additional vaccine doses. Data and clinical...

This was just published by the CDC a few days ago. It is about the inmunocompro...

Iupiter

•3 years ago

7 Replies

Dynamic Duo to the rescue?

"DYNAMIC DUO TO SAVE HUMANITY FROM EVIL BAT VIRUS" would make a good headline in the Daily Planet. Unfortunately for humanity, while the bat virus is real the...

"DYNAMIC DUO TO SAVE HUMANITY FROM EVIL BAT VIRUS" would make a good headline in...

bennevisplace

•3 years ago

9 Replies

Fasting

Is anyone trying intermittent fasting and can attest to the fact that it has helped their numbers or their overall health. Heard that for maximum benefit...

Is anyone trying intermittent fasting and can attest to the fact that it has hel...

Cfarrar

•3 years ago

36 Replies

Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients

The aim of this webinar is to discuss the importance of blood product transfusions and infusions during the care of leukaemia patients. You can register here:...

The aim of this webinar is to discuss the importance of blood product transfusio...

HAIRBEAR_UK

Founder Admin•3 years ago

3 Replies

Fasting leukemia and mice

Interesting article on leukemia, fasting and mice: https://www.labroots.com/trending/cancer/4816/leukemia-cancer-stunted-remission-via-fasting I'm doing a...

Interesting article on leukemia, fasting and mice: https://www.labroots.com/tren...

Research123

•3 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2021

Two Articles Published This Month

Mouth sores

Update to "Feeling Terrible Lately".

CLL Transform to Lymphoma?

Shingrix OK For Immunocompromised Adults

Early detection of COVID-19 in the UK using self-reported symptoms:a large-scale, prospective, epidemiological surveillance study-The Lancet

protection for untreated vs treated cll people

Stemcell transplant or not, that is the question?

Preventive monoclonal antibodies

Antibodies test

Treatment advised (after 21 years w & w)

Suspending Ibrutinib

Sleep Apnea

New research on 400 CLL patients show which factors determine positive response to mRNA Covid-19 vaccine:

All over bar the shouting, or shouting all over the bar?

Venetoclax

Can you give somebody Imbruvica for free in USA

Nutrition and supplements

CLL in your skin

A CLL Patient Story Sprinkled with Shakespeare!

High neutrophils low lymphocytes low IGg

Learning opportunity: "Optimizing Decision-Making in CLL in an Era of Novel Agents"/ What doctors are learning about treating CLL

Paying for imbruvia

Vaccines, 3rd dose, LLS results and more

Humoral and cellular responses after a third dose of BNT162b2vaccine in patients with lymphoid malignancies

CDC report of 07-22

Dynamic Duo to the rescue?

Fasting

Webinar 3.30pm Thursday 29th July - Use of blood products for the care of leukaemia patients

Fasting leukemia and mice

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