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CLL Support

23,337 members•40,045 posts

All posts for January 2022

Efficacy of Antibodies and Antiviral Drugs against Covid-19 Omicron Variant

A study featuring monoclonal antibody treatments (mAbs) Sotrovimab, Evusheld et al, and antiviral treatments Molnupiravir, Remdesivir and a Pfizer antiviral in...

A study featuring monoclonal antibody treatments (mAbs) Sotrovimab, Evusheld et ...

bennevisplace

•3 years ago

5 Replies

Priority PCR Test kit arrived

A Priority PCR test kit arrived today. I am one of the may CLL patients who did not receive the CEV letter by the 10th of January. I did lobby my GP and CNS...

A Priority PCR test kit arrived today. I am one of the may CLL patients who did ...

g684

•3 years ago

27 Replies

Surprise delivery of priority PCR kit this morning

Like many, I'd given up hope of receiving a priority PCR kit, but this morning's post produced a grey plastic bag which contained one! It is clearly a priority...

Like many, I'd given up hope of receiving a priority PCR kit, but this morning's...

IWVC

•3 years ago

37 Replies

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Hypogammaglobulinaemia present

On Venetoclax’till 8/22. No paraprotein seen in recent blood test. Leukocytes 3.3; MCH 32.7; neutrophils 1.97; lymphocytes 0.59; eosinophils 0.00 Rest of...

On Venetoclax’till 8/22. No paraprotein seen in recent blood test. Leukocytes 3...

Abc123qaz

•3 years ago

4 Replies

CLL to Richters

Does anyone know of a CLL to Richters?

Detroit22

•3 years ago

11 Replies

Facemasks

Pogge, thanks for your info, all very confusing. Simple for me though. If you are saying categorically that there is absolutely, no positive benefits from...

Pogge, thanks for your info, all very confusing. Simple for me though. If you ar...

Vindicatrix

•3 years ago

22 Replies

Information on the side effects of ibrutinib

Good resource on heart risks. In uk mostly starting new patients on acalabrutinib due to this and price...

Good resource on heart risks. In uk mostly starting new patients on acalabrutini...

Bartlet

•3 years ago

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CLL and H Pylori

I have only just become aware that studies have shown a connection between CLL and H Pylori. I was diagnosed and treated for H Pylori in 2007 and 2011, and...

I have only just become aware that studies have shown a connection between CLL a...

bendintheroad1

•3 years ago

14 Replies

Anybody is gaining weight on acalabrutinib?

I am on acalabrutinib for 16 months. All my numbers are improved significantly, spleen also decreased in size , but still palpable. No side effects, but I am...

I am on acalabrutinib for 16 months. All my numbers are improved significantly, ...

Belkin123

•3 years ago

26 Replies

3rd Rituximab Infusion One to Go!

I believe that the Rituximab infusions seem to be working. WBC back in normal range. RBC up but still a little low. My Haptoglobin has stayed the same at 14...

I believe that the Rituximab infusions seem to be working. WBC back in normal ra...

SantaZia

•3 years ago

6 Replies

COVID-19 management strategies and vaccine recommendations for patients with hematologic malignancies, USA NY Presbyterian perspective

This video replay is aimed at medical professionals, but seems easy to follow and has some specific details that we all could use (world wide CLL patients)....

This video replay is aimed at medical professionals, but seems easy to follow an...

lankisterguy

Volunteer•3 years ago

5 Replies

Pfizer Paxlovid A Game Changer !!!

Here is a short blurb from a GoodRx email I received about the new Pfizer anti-viral pill Paxlovid. This is a game changer for those of us with CLL weaken...

Here is a short blurb from a GoodRx email I received about the new Pfizer anti-v...

DanBro1

•3 years ago

8 Replies

ASH 2021 Comes to You! The American Society of Hematology (ASH) Annual Meeting had important research reported for future treatment options

ASH 2021 Comes to You!...

lankisterguy

Volunteer•3 years ago

2 Replies

Access to treatment and priority PCRs again

Response from Leukaemia Care Advocacy. "Thank you for bringing that to my attention, I wasn’t aware this was happening that the CMDU were turning people away...

Response from Leukaemia Care Advocacy. "Thank you for bringing that to my atten...

Sumoldbloke

•3 years ago

19 Replies

Anyone in Canada currently taking Ibrutinib and Venetoclax?

I have been on IB for 3 years and am very happy with my doctors approach is that once I progress on IB then we will switch to Venetoclax. I want to appeal to...

I have been on IB for 3 years and am very happy with my doctors approach is that...

steve_canada

•3 years ago

17 Replies

For the Kiwis here - talk on Covid-19 by Dr Rob Weinkove, CLL specialist in NZ

New talk available today on Youtube about our favourite subject as it affects people with haematological cancers incl. CLL, especially in NZ....

New talk available today on Youtube about our favourite subject as it affects pe...

guzzifan

•3 years ago

4 Replies

Evidence omicron risk is higher for blood cancer patients

after two vaccine doses, neutralising antibodies against omicron was detectable in 19% patients against delta was detetable in 39% against original...

after two vaccine doses, neutralising antibodies against omicron was detectable...

Bartlet

•3 years ago

4 Replies

Rejected for Evusheld?

Has anyone else been rejected for Evusheld based on their antibody results? Hematologist is telling me I don't qualify because I have antibodies after 3 first...

Has anyone else been rejected for Evusheld based on their antibody results? Hem...

Podge88

•3 years ago

10 Replies

Does every treatment have a price?

About 6 months ago, I had to switch from Ibrutinib to Alcalabrutinib (Calquence) due to severe side effects (mainly loss of hearing, vision problems, some...

About 6 months ago, I had to switch from Ibrutinib to Alcalabrutinib (Calquence)...

Mumu1

•3 years ago

28 Replies

Clinical trials for Richter's transformation

Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did...

Hello. I would like to ask if you know of any current clinical trials for patien...

Priss69

•3 years ago

34 Replies

3rd or booster

I am chasing up my status regarding 3rd + booster or just 2 + booster. I had 2 AZ early 2022 and a pfizer 'booster' on 1/11. I didn't care so much what they...

I am chasing up my status regarding 3rd + booster or just 2 + booster. I had 2 A...

Belfastbees

•3 years ago

11 Replies

Nitric Oxide

I am always lookng for ways to assist me, as I travel through the quagmire of information and misinformation, which seems to exsist for most oif us CLL'rs....

I am always lookng for ways to assist me, as I travel through the quagmire of i...

Vindicatrix

•3 years ago

20 Replies

Ordered my Home PCR Test to access new treatments (Sotrovimab and Molnupiravir)

Update: Please now see my later post on the Priority version of the test:...

Ernest2

•3 years ago

82 Replies

End of the 7-year FLAIR trial in the FCR arm

Well, I’ve made it to the end of the 7-year FLAIR trial in the FCR chemoimmunotherapy arm (treated in 2014/2015) I went to my last review in December at the...

Well, I’ve made it to the end of the 7-year FLAIR trial in the FCR chemoimmunoth...

Ernest2

•3 years ago

38 Replies

Acalabrutinib 2 Weeks in

Hi all, I started my Acalabrutinib treatment 2 weeks ago. I have to say I have no side effects other than a slight headache in the mornings when I wake some...

Hi all, I started my Acalabrutinib treatment 2 weeks ago. I have to say I have n...

uide3095

•3 years ago

2 Replies

CLL-the unexpected- the rash

This image is the start of the husband’s rash around December 20 and the reason that the dr had him stop taking the Imbruvica. The sores kind of multiplied and...

This image is the start of the husband’s rash around December 20 and the reason ...

GrannyMyers

•3 years ago

1 Reply

Experience with Calquence for CLL

Anyone taking calquence for CLL? Dr starting my Dad on it next week and wanting to know what to expect . He is 85,

Anyone taking calquence for CLL? Dr starting my Dad on it next week and wanting...

Nbk6362

•3 years ago

2 Replies

CLL-the unexpected-post splenectomy.

Finally got the husband home after 10 days in the hospital for his ruptured spleen. Seems to be getting along ok.. bladder was lazy so had to have a Foley...

Finally got the husband home after 10 days in the hospital for his ruptured sple...

GrannyMyers

•3 years ago

13 Replies

Fluctuating Labs Post-Treatment?

Hi everyone, Just wondering: I've been done with O+V for around ten months now, URD-neagative thankfully, get labs done every six weeks, and ... seems like...

Hi everyone, Just wondering: I've been done with O+V for around ten months now, ...

DRM18

•3 years ago

8 Replies

High LDH and increasing

Hi, this is my first post. i have non cirrhotic portal hypertension (caused by sepsis,4 years ago) with varies in gut stomach and now also oesophagus. Last...

Hi, this is my first post. i have non cirrhotic portal hypertension (caused by s...

PiperAlfie

•3 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2022

Efficacy of Antibodies and Antiviral Drugs against Covid-19 Omicron Variant

Priority PCR Test kit arrived

Surprise delivery of priority PCR kit this morning

Hypogammaglobulinaemia present

CLL to Richters

Facemasks

Information on the side effects of ibrutinib

CLL and H Pylori

Anybody is gaining weight on acalabrutinib?

3rd Rituximab Infusion One to Go!

COVID-19 management strategies and vaccine recommendations for patients with hematologic malignancies, USA NY Presbyterian perspective

Pfizer Paxlovid A Game Changer !!!

ASH 2021 Comes to You! The American Society of Hematology (ASH) Annual Meeting had important research reported for future treatment options

Access to treatment and priority PCRs again

Anyone in Canada currently taking Ibrutinib and Venetoclax?

For the Kiwis here - talk on Covid-19 by Dr Rob Weinkove, CLL specialist in NZ

Evidence omicron risk is higher for blood cancer patients

Rejected for Evusheld?

Does every treatment have a price?

Clinical trials for Richter's transformation

3rd or booster

Nitric Oxide

Ordered my Home PCR Test to access new treatments (Sotrovimab and Molnupiravir)

End of the 7-year FLAIR trial in the FCR arm

Acalabrutinib 2 Weeks in

CLL-the unexpected- the rash

Experience with Calquence for CLL

CLL-the unexpected-post splenectomy.

Fluctuating Labs Post-Treatment?

High LDH and increasing

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