Posts - CLL Support | HealthUnlocked

CLL Support

23,347 members•40,067 posts

All posts for December 2017

Watch and wait is over

Hi all, I was diagnosed 3 years ago with CLL, I am now 53 yo and with wbc up and platelets down as well as swollen lymph nodes and enlarged spleen my Doctor...

Hi all, I was diagnosed 3 years ago with CLL, I am now 53 yo and with wbc up and...

Mosaicgigi

•7 years ago

22 Replies

stopped imbruvica

I was on imbruvica (3 pills 420) for about 3 months and CBC test came back better, however I got so sick my doctor stopped me that was about 10 weeks ago and...

I was on imbruvica (3 pills 420) for about 3 months and CBC test came back bette...

The_Eagle

•7 years ago

11 Replies

Confused are the dr.s still using chemo with new drugs

Hi everyone, I am near treatment. When I read these posts about people on the new drugs it seems like they are taking them with chemo. My doctor says he does...

Hi everyone, I am near treatment. When I read these posts about people on the ne...

hmo1

•7 years ago

11 Replies

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Newly diagnosed

Just diagnosed, which was a surprise since I have no family history of cancer and lead a healthy life, but I served in an infantry unit with in Vietnam so...

Just diagnosed, which was a surprise since I have no family history of cancer an...

Tommy777

•7 years ago

24 Replies

HELP...😣

Help! I keep getting posts from CONCERNED...Kayley12345 and I want to unfollow her. Can an administrator help with this problem.? Thanks, nanno77

Help! I keep getting posts from CONCERNED...Kayley12345 and I want to unfollow ...

Nanno77

•7 years ago

5 Replies

CLL at 78 and on Imbruvica

Ken, 78, diagnosed with CLL 2012. Watch and wait ‘til Aug, 2017, then Imbruvica. Exerciser and cautious eater. Minimal side effects. Fingers crossed....

Ken, 78, diagnosed with CLL 2012. Watch and wait ‘til Aug, 2017, then Imbruvica...

Kenbikelaw

•7 years ago

20 Replies

Neck Pain

Hi Everyone. I have had excruciating neck and shoulder pain over the last week. I had an xray at the hospital ( I am on holiday in Lanzarote) which showed...

Hi Everyone. I have had excruciating neck and shoulder pain over the last week. ...

Jem67

•7 years ago

7 Replies

Cll and fatigue

I was diagnosed in November 2017 with stage 0 cll; FISH test is negative; and now waiting on NGS/foundation test results. The biggest problem I have right now...

I was diagnosed in November 2017 with stage 0 cll; FISH test is negative; and no...

TXteacher

•7 years ago

16 Replies

Leukeran (Chlorambucil) Rash?

In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV. In August, I started a course of monthly treatments...

In May of this year, I was diagnosed with Stage III CLL, and then a CLL speciali...

Smedley54

•7 years ago

17 Replies

Snoring and CLL

Have noticed that since being diagnosed with CLL I have started snoring. Got so bad that most nights I'm banished to the spare room. I know that snoring is...

Have noticed that since being diagnosed with CLL I have started snoring. Got so ...

Srob47

•7 years ago

26 Replies

CAR T Cells: Exciting, but Who Is Going to Cover Costs?

CAR T-cell therapies have generated tremendous excitement in the oncologic community, as they have elicited responses and complete remissions in patients who...

CAR T-cell therapies have generated tremendous excitement in the oncologic commu...

Cllcanada

At what Neutroplis count would treatment start?

My blood count today showed: Haemoglobin (Hb) (Xa96v)122; Total white blood count (WBC) 37.1; Platelet count 115; Neutrophils1; Lymphocyte count35.8. No B...

My blood count today showed: Haemoglobin (Hb) (Xa96v)122; Total white blood coun...

zaax

•7 years ago

3 Replies

Cll White blood went up high slowly coming down.

Can you get nausaus on imbruvica, if no problem he’s been on it since November, only today felt nauseous and dizzy

Can you get nausaus on imbruvica, if no problem he’s been on it since November,...

anniefrankie8679

•7 years ago

1 Reply

Venetoclax and fatigue

Greetings fellow CLLers, I was on ibrutinib for 3 years and stopped due to fatigue, which disappeared after 3 weeks or so off the drug. I started venetoclax 14...

Greetings fellow CLLers, I was on ibrutinib for 3 years and stopped due to fatig...

benmarto

•7 years ago

3 Replies

Venetoclax - hallucinations?

Hello all, First post here. I'm posting on behalf of my mom. She is 66 and has had CLL for approx. 10 years. I think 17p, but I'm not certain. She...

Hello all, First post here. I'm posting on behalf of my mom. She is 66 and ha...

Hidden

•7 years ago

13 Replies

IVIG

Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no...

Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and ...

Ladydi49

•7 years ago

8 Replies

Wait & Watch question

Hello Friends, Happy Holidays! I have rather remedial(?) question: When we Wait & Watch, what are we Waiting for? symptoms bad enough to seek treatment? I...

Hello Friends, Happy Holidays! I have rather remedial(?) question: When we Wait ...

Hidden

•7 years ago

17 Replies

Happy holiday wishes

Just entered my first post a couple minutes ago. Now, I want to wish everyone a very Merry Christmas and a healthy Happy New Year. I hope 2018 is a much...

Just entered my first post a couple minutes ago. Now, I want to wish everyone a ...

SMS-not-cll

•7 years ago

2 Replies

New to site and ready to connect to fellow CLL people.

Hi, this is my first post, and I look forward to reading all your information. I was diagnosed with CLL in January, 2014. My white blood count has...

Hi, this is my first post, and I look forward to reading all your information. ...

SMS-not-cll

•7 years ago

5 Replies

Acceptance

Hello all My first post after reading posts usually first thing in the morning. I'm a 55 yr old male diagnosed in 2009 with CLL & have psoriatic arthritis...

Hello all My first post after reading posts usually first thing in the morning. ...

Sutto

•7 years ago

2 Replies

Fcr started

First post after lots of reading on here. It has all been very helpful. I am male aged 66 diagnosed 4 years ago after hernia surgery If not for that I would...

First post after lots of reading on here. It has all been very helpful. I am mal...

Alex15alex

•7 years ago

6 Replies

vecabrutinib (previously known as SNS-062)

http://ir.sunesis.com/static-files/52517a5d-4b17-4842-9de7-77e84bfbdda4

avzuclav

•7 years ago

2 Replies

Illness for two months, low white blood count just at 1.

I've been unwell for two months now, I've been to the hospital about 4 times, they Say I've been surffing from a viral infection, bit surely it wouldn't go on...

I've been unwell for two months now, I've been to the hospital about 4 times, th...

Kayley12345

•7 years ago

28 Replies

Merry Christmas everyone

Just wanted to say Merry Christmas and a healthier and happy New Year. Hang in there and take each day as it comes. Pat

Just wanted to say Merry Christmas and a healthier and happy New Year. Hang in t...

Pat1954

•7 years ago

2 Replies

Tidings of Joy this happy time

I went for my three monthly check up yesterday and another CT Scan. After bloods and a thorough examination the results were in, 10's across the board or...

I went for my three monthly check up yesterday and another CT Scan. After bloods...

Berrytog

•7 years ago

6 Replies

Seasons Greetings

Hello everyone, just at the local shopping centre watching everyone getting their last Xmas purchases, which got me to thinking how different things are since...

Hello everyone, just at the local shopping centre watching everyone getting thei...

Kathp

•7 years ago

7 Replies

CLL/Lymphoma in second remission

Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 months because of suspected side effects. However, I responded well and went into...

Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 month...

BarbLorraine

•7 years ago

3 Replies

Sore fingers.

I have been on Ibrutinib since June for my SLL. Have had various side effects that have come n gone have now got very sore finger tips. Anybody else...

I have been on Ibrutinib since June for my SLL. Have had various side effects th...

Tigger53

•7 years ago

19 Replies

Hot flashes in manly men ?

Boy, times I have to have a fan on me and I am hot when everyone is cold. I sweat like a pig so I can't wear a suit especially a tie. I walk my puppy and dress...

Boy, times I have to have a fan on me and I am hot when everyone is cold. I swea...

scaredandlost

•7 years ago

3 Replies

New and Undiagnosed

Hello, I'm new around here and do not have a CLL diagnosis at this time. I know it's bad to chat with Dr Google, but I just received an abnormal lymphocyte...

Hello, I'm new around here and do not have a CLL diagnosis at this time. I know ...

ETNsilverstar

•7 years ago

22 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2017

Watch and wait is over

stopped imbruvica

Confused are the dr.s still using chemo with new drugs

Newly diagnosed

HELP...😣

CLL at 78 and on Imbruvica

Neck Pain

Cll and fatigue

Leukeran (Chlorambucil) Rash?

Snoring and CLL

CAR T Cells: Exciting, but Who Is Going to Cover Costs?

At what Neutroplis count would treatment start?

Cll White blood went up high slowly coming down.

Venetoclax and fatigue

Venetoclax - hallucinations?

IVIG

Wait & Watch question

Happy holiday wishes

New to site and ready to connect to fellow CLL people.

Acceptance

Fcr started

vecabrutinib (previously known as SNS-062)

Illness for two months, low white blood count just at 1.

Merry Christmas everyone

Tidings of Joy this happy time

Seasons Greetings

CLL/Lymphoma in second remission

Sore fingers.

Hot flashes in manly men ?

New and Undiagnosed

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