Posts - CLL Support | HealthUnlocked

CLL Support

23,337 members•40,046 posts

All posts for February 2016

Out of remission?

My very first post but I have been following for awhile. Exactly when is a person considered out of remission? I was Dx with CLL in 2012. 4 rounds of FCR in...

My very first post but I have been following for awhile. Exactly when is a perso...

Bama-Girl

•9 years ago

2 Replies

I wouldn't be where I am now if it wasn't for CLLSA

When I was first diagnosed I was totally lost I thought that was it I was done for How wrong I was if it wasn't for going to Oxford to one of the CLLSA...

When I was first diagnosed I was totally lost I thought that was it I was done f...

Hidden

•9 years ago

4 Replies

Simples

I hope I don't go on too much but if we don't help ourselves who will - simples https://www.justgiving.com/Julian-Twocock3 I went out Cycling Saturday as I...

I hope I don't go on too much but if we don't help ourselves who will - simples ...

Hidden

•9 years ago

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https://www.justgiving.com/Julian-Twocock3

Hi All Mr X has a bone marrow biopsy tomorrow as he is about to start treatment. What is he doing today ........ He's raising funds for Leukaemia and...

Hi All Mr X has a bone marrow biopsy tomorrow as he is about to start treatment...

Hidden

•9 years ago

5 Replies

Alopurinol

Start treatment for two days with Chlorambucil 6mg /day -7d. I dont know how use Alopurinol (300mg).when?.Beofore one day,all in one dose or when starting...

Start treatment for two days with Chlorambucil 6mg /day -7d. I dont know how use...

Name-1

•9 years ago

6 Replies

antiperspirant is it good or bad?

Just wondering if anyone no ' s the best too use .

ballyhoo

•9 years ago

8 Replies

Trisomy 12

Hi everyone. I saw my consultant on Thursday with the results of my recent blood test and PET scan. The PET scan only showed the enlarged lymph nodes that I...

Hi everyone. I saw my consultant on Thursday with the results of my recent blood...

Cindy1462

•9 years ago

9 Replies

Results

Hi All Just got back from Oxford all went well WBC 92 was 81 last time - Haemoglobin 16.4 Platelets 273 I did post about doing dry January and febuary or...

Hi All Just got back from Oxford all went well WBC 92 was 81 last time - Haem...

Hidden

•9 years ago

11 Replies

Need some input

Does anyone have any experience with Cancer Treatment Center of America and would you recommend them for 2nd opinion on CLL?

Does anyone have any experience with Cancer Treatment Center of America and woul...

lka2251

•9 years ago

20 Replies

New free app

We are trying to make something positive out of our Cll journey. My wonderful husband has recently developed a free app called treatment planner that we...

We are trying to make something positive out of our Cll journey. My wonderful ...

Groetjes

•9 years ago

3 Replies

A Walk In The English Countryside

Flatford Mill Constable Country,Hope all fellow CLLers are having a good day [Sun-Flower]

Flatford Mill Constable Country,Hope all fellow CLLers are having a good day [Su...

sun_flower

•9 years ago

10 Replies

Flair trail update Ibrutinib and Rituximab round 4

About to have infusion of Riutximab 5 this week. saw doctor yesterday. I have been suffering increasing joint and muscle pain over the last 2 months....

About to have infusion of Riutximab 5 this week. saw doctor yesterday. I have b...

romarin

•9 years ago

10 Replies

From One Trial to Another

Friends, This week in the Clinical Trials section of the CLL Society website, we have posted an article authored by Adam Irgom. He shares the story of his fast...

Friends, This week in the Clinical Trials section of the CLL Society website, we...

bkoffman

CLL CURE Hero•9 years ago

2 Replies

CLL question - constantly feel sick, node and spleen discomfort. What can help? Are any supplements useful?

I don't post much but I felt the need too. I have been on watch and wait for 6 months now and my numbers have been up and down but not enough to trigger...

I don't post much but I felt the need too. I have been on watch and wait for 6 ...

BCTexas

•9 years ago

52 Replies

CLL Disclosure? (UK).

I have been offered a job, which I have accepted. As part of the application, there is a medical questionnaire, asking about condition's I may have, I have...

I have been offered a job, which I have accepted. As part of the application, t...

Hidden

•9 years ago

14 Replies

Question

Tea od dandelion? Do You know what work for CLL? Maybe tea of radix dandelion? Olga

Tea od dandelion? Do You know what work for CLL? Maybe tea of radix dandelion? O...

Name-1

•9 years ago

11 Replies

Hang on Sloopy.

I'm a Zap 70 20% + CLL patient which is not the best of news but for those of us in that position, here is a very encouraging article which should give us all...

I'm a Zap 70 20% + CLL patient which is not the best of news but for those of us...

RK66

•9 years ago

7 Replies

CLL&Dizziness,Cloudy Brain....anyone?

I was diagnosed with CLL 3 years ago. I have had skin issues, severe allergies all of a sudden to things I was never allergic to prior to diagnosis. I did 4...

I was diagnosed with CLL 3 years ago. I have had skin issues, severe allergies ...

deanna2289

•9 years ago

15 Replies

CLL concerns 🤔

How did your doctor realized you were being diagnosed with CLL? What tests did he take? How did it all happened?

How did your doctor realized you were being diagnosed with CLL? What tests did h...

__jessvr

•9 years ago

3 Replies

Does anyone have more information about this

Culled from euro news. Scientists say tests of a potentially groundbreaking new cancer therapy have had “extraordinary” results. More than 90 percent of...

Culled from euro news. Scientists say tests of a potentially groundbreaking new...

Tunde_s

•9 years ago

9 Replies

CLL

what symptoms do you guys get for CLL? I'm afraid I might be diagnosed with CLL and I just wanted to know a little heads up.

what symptoms do you guys get for CLL? I'm afraid I might be diagnosed with CLL ...

__jessvr

•9 years ago

22 Replies

Looking for some answers, hope you can help. My Father recently passed away. He had CLL.

Hi folks. I know very little about CLL. My Father was diagnosed a couple of years ago. He attended regular check ups at the hospital, I believe they...

Hi folks. I know very little about CLL. My Father was diagnosed a couple of ye...

Dancindufas

•9 years ago

7 Replies

Summit Opportunity of those interested in Online Patient Advocacy

HealtheVoices 2016 is a great idea and a super opportunity for anyone wanting to share best practices and needing to learn that we are not alone in our...

HealtheVoices 2016 is a great idea and a super opportunity for anyone wanting to...

bkoffman

CLL CURE Hero•9 years ago

Be the first to reply

Hope is on the way.

This morning's news should give us all cause to smile and to keep hope alive....

RK66

•9 years ago

5 Replies

Bone Marrow Biopsy ?

My husband is about to have round 5 of BR chemotherapy tomorrow ...after his CT scan last week his Consultant said blood results, lymph nodes , spleen are all...

My husband is about to have round 5 of BR chemotherapy tomorrow ...after his CT ...

alice111

•9 years ago

4 Replies

Cure? Some encouraging news on BBC this morning.

http://www.scotsman.com/news/scientists-hail-unprecedented-cancer-therapy-results-1-4031490? This is actually a link to a newspaper - but some interesting...

http://www.scotsman.com/news/scientists-hail-unprecedented-cancer-therapy-result...

thelutondodger

•9 years ago

3 Replies

Latest CBC - ALC/RBC/HB all going down

Hi All, back after a break. My latest CBC revealing that my ALC has been dropped from 234 to 180 and WBC dropped 237 to 185. I was happy with this picture but...

Hi All, back after a break. My latest CBC revealing that my ALC has been dropped...

AAli

•9 years ago

3 Replies

Blood Cell Crowding :

Never have I seen blood cells platlets reaching out to each other and so crowded. Could this be acute phase eventually crowding out healthy cells. Do I have...

Never have I seen blood cells platlets reaching out to each other and so crowded...

Hidden

•9 years ago

5 Replies

Shingles

Hello my friends, Just a question, I have cll and although it's not in remission, I have very few cll cells floating around. The last weak I had so much skin...

Hello my friends, Just a question, I have cll and although it's not in remissio...

Kimsome

•9 years ago

31 Replies

Sweaty hands

Hi...Does anyone here get really sweaty hands at times. I've been on w& w for 16 yrs. Lymph nodes are causing aching around neck and armpits as well also right...

Hi...Does anyone here get really sweaty hands at times. I've been on w& w for 16...

kitcat49

•9 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2016

Out of remission?

I wouldn't be where I am now if it wasn't for CLLSA

Simples

https://www.justgiving.com/Julian-Twocock3

Alopurinol

antiperspirant is it good or bad?

Trisomy 12

Results

Need some input

New free app

A Walk In The English Countryside

Flair trail update Ibrutinib and Rituximab round 4

From One Trial to Another

CLL question - constantly feel sick, node and spleen discomfort. What can help? Are any supplements useful?

CLL Disclosure? (UK).

Question

Hang on Sloopy.

CLL&Dizziness,Cloudy Brain....anyone?

CLL concerns 🤔

Does anyone have more information about this

CLL

Looking for some answers, hope you can help. My Father recently passed away. He had CLL.

Summit Opportunity of those interested in Online Patient Advocacy

Hope is on the way.

Bone Marrow Biopsy ?

Cure? Some encouraging news on BBC this morning.

Latest CBC - ALC/RBC/HB all going down

Blood Cell Crowding :

Shingles

Sweaty hands

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