Posts - CLL Support | HealthUnlocked

Top Poster CURE Hero•11 years ago

Hi everyone After reflecting on yesterday's Cardiff CLLSA patient meeting and the talks by leading UK clinical researchers and scientists....

Reflections from Cardiff, news of CLL research and the changing trials landscape

Hi everyone After reflecting on yesterday's Cardiff CLLSA p...

HAIRBEAR_UK

Founder Admin•11 years ago

7 Replies

Letters from hospital

I have had two letters from the same hospital but from two different depts. One from the haematology dept one from pallative dept. Although I know that these...

I have had two letters from the same hospital but from two different depts. One ...

jangreen

•11 years ago

8 Replies

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Why do we get night sweats? and do we also have them in the day, but just not notice?

Quarry

•11 years ago

5 Replies

Bone Marrow test

I have had a bone marrow test on Friday. While it did not particularly hurt the area around it is now starting to be sore (3 days later). It is especially...

I have had a bone marrow test on Friday. While it did not particularly hurt the...

hammyj

•11 years ago

13 Replies

ASH 2012. Dr John Byrd thanks the patient participants.

I just posted the very brief final segment of my interview with Dr. Byrd. See www.bkoffman.blogspot.com

I just posted the very brief final segment of my interview with Dr. Byrd. See ww...

bkoffman

CLL CURE Hero•11 years ago

2 Replies

ASH 2012 CLL Paper Slideshow Summary by Susan O'Brien and Kanti Rai

A slideshow summary of CLL related papers, presented at last year's American Society of Hematology (ASH) Annual Meeting is now available from Clinical Care...

A slideshow summary of CLL related papers, presented at last year's American Soc...

Administrator•11 years ago

Alcohol-based hand sanitizers may not be the panacea for hand hygiene they were once supposed, as mounting research indicates they may not be effective...

Is Allopurinol not needed for continuing treatment with FCR if the WBC is 2.0?

keepfit123

•11 years ago

8 Replies

Preventing Norovirus ...hand sanitizers may increase the risk... new strain emerges in U.S.

Alcohol-based hand sanitizers may not be the panacea for hand hygiene they were ...

Texting while in Surgery? http://www.medscape.com/features/slideshow/hazards2013#1

Top Poster CURE Hero•11 years ago

2 Replies

10 Worst Medical Treatment Dangers: 2013 ...not CLL specific but interesting

Texting while in Surgery? http://www.medscape.com/features/slideshow/hazards2...

CLL diagnosed 6 months ago after blood tests. Until recently, no symptoms. In recent weeks, when eating an evening meal, a vibration in the stomach/liver...

Top Poster CURE Hero•11 years ago

4 Replies

With low grade CLL how does spread to the liver manifest itself ?

CLL diagnosed 6 months ago after blood tests. Until recently, no symptoms. In re...

wolflein

•11 years ago

9 Replies

ASH 2012 Interview: Dr Jeff Sharman "Why New CLL Treatments Supersede FCR"

Dr Sharman's blog http://www.cll-nhl.com, is well worth keeping an eye on for pertinent but easily understandable articles on lymphomas, with CLL getting...

Dr Sharman's blog http://www.cll-nhl.com, is well worth keeping an eye on for pe...

I just posted the third of a four part interview with Dr. Byrd where he discusses some of the details of what we know about ibrutinib therapy so far. This is a...

Administrator•11 years ago

6 Replies

ASH 2012 Interviews Part 3 Dr. John Byrd on Ibrutinib

I just posted the third of a four part interview with Dr. Byrd where he discusse...

bkoffman

CLL CURE Hero•11 years ago

1 Reply

Joint aches and pains

Now, after several months of varying discomfort, I must say that the joints aches and pains are getting to me. I wake in the morning and my toes and fingers...

Now, after several months of varying discomfort, I must say that the joints ache...

Hidden

•11 years ago

7 Replies

Influenza virus likes dry or very damp conditions

A recent study aimed to determine the relationship between ambient humidity and viability of the influenza A virus found that viability during transmission...

A recent study aimed to determine the relationship between ambient humidity and ...

Administrator•11 years ago

Refractory disease A refractory disease is a disease that resists treatment, especially an individual case that resists treatment more than is normal for...

Someone asked me what refractory means...

Refractory disease A refractory disease is a disease that resists treatment, ...

I know some ibrutinib trials has began in the uk also consultants going through NICE to make this drug available to some patients Stewie Watch and wait...

Top Poster CURE Hero•11 years ago

1 Reply

Hi everyone , how far do you think we are away from not using FCR has the first line treatment , and drugs such as ibrutinib or cal - 101

I know some ibrutinib trials has began in the uk also consultants going through ...

stewie

•11 years ago

10 Replies

Does anyone have strange feelings in their neck having had FCR? I finished my treatment in Oct and have started having an uncomfortable neck

Nicebaps

•11 years ago

4 Replies

The difficulties of working when you have low immunity

http://dilbert.com/strips/comic/2009-11-15/ Thanks Scott Adams!

In this 6 minute interview by Andrew Schorr, Dr Michael Keating of MD Anderson, the father of FCR, acknowledges that while FCR has given a third of patients...

Administrator•11 years ago

2 Replies

Patient Power interviews Dr Michael Keating at ASH 2012. FCR and the transition to better, kinder treatments.

In this 6 minute interview by Andrew Schorr, Dr Michael Keating of MD Anderson, ...

Those who have experienced treatment in the UK - my question is what tests do we expect to be carried out by the consultant before deciding what treatment is...

Administrator•11 years ago

5 Replies

As a 66 year old on three years w & w - my lymph nodes and general health make me think my time for treatment may be soon.

Those who have experienced treatment in the UK - my question is what tests do we...

SimplyauburnUK

•11 years ago

10 Replies

Had Fludarabine? You can only have irradiated blood...for life.

This is a repost...for some reason the messages isn't getting through... It simply amazes me how many fludarabine treated CLL patients are not aware of...

This is a repost...for some reason the messages isn't getting through... It...

Just a brief note to let you know there are a few places available for the Cardiff CLL meeting on Jan 30th....

Top Poster CURE Hero•11 years ago

8 Replies

PLACES AVAILABLE, Cardiff CLL meeting and talks, Jan 30th 2013

Just a brief note to let you know there are a few places available for the Cardi...

HAIRBEAR_UK

Founder Admin•11 years ago

With our ever increasingly networked world, where prompt access to our medical conditions could be a matter of life and death when emergency intervention is...

How safe are your medical records?

With our ever increasingly networked world, where prompt access to our medical c...

my father diagnose CLL (stage -A) in September 2009,his age is 55 years, we take appointment with doctor for treatment and after complete checkup doctor start...

Administrator•11 years ago

9 Replies

in CLL(Stage-A) after six courses of fludarbine, how much chances of relapse and what are the further treatments if relapse.

my father diagnose CLL (stage -A) in September 2009,his age is 55 years, we take...

shahid

•11 years ago

6 Replies

Why aren't we having a Ball of a Time?

As I lay in the dentist's chair today, hopefully protected from bacterial infections by my antibiotic prophylactic, I watched the occasional fireworks as fine...

As I lay in the dentist's chair today, hopefully protected from bacterial infect...

Flu reaches epidemic level in U.S., says CDC While flu vaccines offer protection, they are not failsafe. This year's flu vaccine is 62 percent effective,...

Administrator•11 years ago

12 Replies

Flu reaches epidemic level in U.S., says CDC

Flu reaches epidemic level in U.S., says CDC While flu vaccines offer protect...