Posts - CLL Support | HealthUnlocked

Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of the six treatments. Prior to this I had been diagnosed with Psoriatic Arthritis...

•11 years ago

8 Replies

Any alternative Pneumonia vaccines?

Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of th...

Mick491

•11 years ago

6 Replies

How can I get a Second opinion in another EU country or in the US?

Can anybody advice me on how I can get a second opinion from at doc in UK or US (or another EU contry). I live in Denmark, and find it very har to get a...

Can anybody advice me on how I can get a second opinion from at doc in UK or US ...

Damms

•11 years ago

9 Replies

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Should someone go for a blood test..?

Should someone go for a blood draw..? It’s is the beginning of the flu season and some say it started early in England this year. But the question is:- The...

Should someone go for a blood draw..? It’s is the beginning of the flu season a...

The latest video From Andrew Schorr and Patient Power Dr. William Wierda of MD Anderson discusses the recent data releases at ASH this year Offering some...

•11 years ago

1 Reply

Is Long-Term CLL Remission with FCR a Cure?

The latest video From Andrew Schorr and Patient Power Dr. William Wierda of MD ...

HAIRBEAR_UK

Founder Admin•11 years ago

Hi CLLers, Well into my third round of B + R chemo treatment yesterday and today - and all seems to be going well! My IVIG Infusions have now caught up with...

September - Clinical trial update - B + R and Idelalisib - CAL 101

Hi CLLers, Well into my third round of B + R chemo treatment yesterday and toda...

MartyR

•11 years ago

5 Replies

The developing picture of on-line support

Hi everyone, Yesterday I travelled to London with a colleague to meet with Andrew Schorr of Patient Power. We had a great meeting. we look forward to working...

Hi everyone, Yesterday I travelled to London with a colleague to meet with And...

HAIRBEAR_UK

Founder Admin•11 years ago

How good communication underpins positive patient outcomes. Good communication with your doctor, oncologist or haematologist has been proven to increase the...

Good communication with your doctor(s)

How good communication underpins positive patient outcomes. Good communication ...

Now that this site is working as it should (am I tempting fate saying that?), we have the opportunity to widen how we share the joy we find in our lives and...

•11 years ago

1 Reply

Do we have enough interest to begin a Photographer's Corner?

Now that this site is working as it should (am I tempting fate saying that?), we...

It has only come on over the last couple of weeks but it is an annoying dull ache at the shoulder and it gets worse when I go to bed. It sometimes shoots down...

Administrator•11 years ago

5 Replies

I have noticed lately that I am getting an ache in my left shoulder, could this be CLL related?

It has only come on over the last couple of weeks but it is an annoying dull ach...

pitbull

•11 years ago

21 Replies

I cannot fully update my profile because watch & wait isn't an option on the treatment list. What have others put in for this?

pitbull

•11 years ago

It has been thought that Clostridium difficile infection is transmitted predominantly within health care settings. However, endemic spread has hampered...

Over a 3-year period, 45% of C. difficile cases in Oxfordshire were genetically distinct from all previous cases.

It has been thought that Clostridium difficile infection is transmitted predomin...

Cllcanada

Dr Rick Furman interviewed at IWCLL by Patient Power

Another up beat interview from IWCLL that I found particularly interesting. Again, most of us will need to remain patient for many years before the future...

Another up beat interview from IWCLL that I found particularly interesting. Aga...

Erythropoietin (popularly known as EPO) and perhaps Filgrastim may be familiar drugs to those of us that have needed treatment to bring our blood counts up....

Administrator•11 years ago

2 Replies

What are you pedalling, Mr Prime Minister?

Erythropoietin (popularly known as EPO) and perhaps Filgrastim may be familiar d...

Hi all So, after my last round of concern for my dear dad and the mention of a Bone Marrow Transport was unfounded - the poor ol' chap got confused with...

Administrator•11 years ago

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Feeling sick with worry - ALC & Steriods

Hi all So, after my last round of concern for my dear dad and the mention of a ...

auntiebarnes

•11 years ago

2 Replies

Clonal Evolution

Prompted by the end of the thread that Neil started recently on ABT199, you all reminded me about clonal evolution. I've previously put that one on the “too...

Prompted by the end of the thread that Neil started recently on ABT199, you all ...

Ernest2

•11 years ago

Hi everyone It's that time again. Your GP may be taking bookings for your annual flu jab. Time to get yourself jabbed. Although CLL patients may not get the...

Don't forget your flu jab.

Hi everyone It's that time again. Your GP may be taking bookings for your annua...

HAIRBEAR_UK

Founder Admin•11 years ago

25 Replies

Dr Sharman shares why his blog has been quiet lately

http://www.cll-nhl.com/2013/09/summer-off.html Worth a read for an understanding of why Dr Sharman started his blog, why it has been quiet lately and what's...

http://www.cll-nhl.com/2013/09/summer-off.html Worth a read for an understanding...

Can anyone explain the difference between "Latest activity" and "News feed"? And why does it sometimes say so-and-so "responded" and sometimes that they...

Administrator•11 years ago

1 Reply

Why do some postings appear under "Latest activity", but not in "News feed"?

Can anyone explain the difference between "Latest activity" and "News feed"? A...

PaulaS

Volunteer•11 years ago

I am battling with low WBC, values below 1 (currently 0,5), and it seams to be a returning issue after chemo last summer. What to do?

Damms

•11 years ago

When a drug trial does not produce the expected result the research can be shelved and become unavailable. There is a movement to force drug companies to...

Drug trials and the release of ALL the data.

When a drug trial does not produce the expected result the research can be shelv...

Following are my notes on the presentation by Andrew Roberts, to the Australian Leukaemia Foundation August CLL Teleforum, on Australian experiences with the...

•11 years ago

5 Replies

ABT-199 Trial experience in Australia

Following are my notes on the presentation by Andrew Roberts, to the Australian ...

Administrator•11 years ago

14 Replies

My husband's 2nd round of fcr was delayed again due to low hemoglobin but other blood values are within range. What could be causing this?

LAinNYC

•11 years ago

Hairbear posted a few weeks ago regarding insect bites and I know some others have had problems during the summer. I came across additional information and...

My granddaughter has had her Mmr, Pvc and Hib/MenC vaccinations today. will she be able to visit me tomorrow? The Mmr is a live vaccine.

flutterbye

•11 years ago

9 Replies

Insect bites continued

Hairbear posted a few weeks ago regarding insect bites and I know some others ha...

'More than two million people are infected by drug-resistant germs each year, and 23,000 die of their infections, federal health officials reported Monday. The...

•11 years ago

7 Replies

Is anyone diagnosed at stage 4, with swollen lymph nodes all over, with it in the bone marrow, and so-on still on watch and wait?

RemingtonSteele

•11 years ago

7 Replies

C.difficile, the biggest killer... new U.S. study on drug resistant germs by the CDC

'More than two million people are infected by drug-resistant germs each year, an...

Cllcanada

iwCLL 2013; Dr. Castro on the latest Research into the Biology of CLL

Friends, Dr. Castro out of UCSD explains in easily understood ways the research on clonal evolution, mRNA, and the darned ingenuity of the CLL cell. This is...

Friends, Dr. Castro out of UCSD explains in easily understood ways the research...

bkoffman

CLL CURE Hero•11 years ago

I'm currently receiving treament as part of the Rialto trial and I know that I need to be careful of people who have infections . However,does anyone know how...

How careful do I need to be re: contact with people with infections?

I'm currently receiving treament as part of the Rialto trial and I know that I n...

UKfulloflife

•11 years ago