which type of CLL fast progression or slow pro... - CLL Support

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which type of CLL fast progression or slow progression might be this?

Sagarcanada profile image
6 Replies

I have been quite active during the past few days to read different posts and ask questions about CLL as I am curious to explore something interesting so that it may be helpful to my wife as she is recently diagnosed CLL?

I found experts and members are very cooperative in this CLL club. We are not getting much information and feedback on blood reports from our GP/hematologist as consultation with him is the only phone so I am going to put my inquiry below?

This is the blood report (some of the parameters) of my wife:

WBC count 17.9 , Lymphocyte count 12.8 in September 2020

WBC count 18.3 , Lymphocyte count 12.1 in November 2020

WBC count 22.9 , Lymohocyte count 19.0 in March 2021

Other blood parameters like IGGA, IGG, and IGM, Hemoglobin, Ferritin, Alpha, and Beta globulin are normal. The platelets count decreasing but still within the normal range. My wife getting night sweats for the last few days.

While going through different posts, I found some of the CLL patients are in stable conditions still under W & W conditions even after a long time. I think it is a slow progression.

We have an appointment with a hematologist only in Jun 2021.

From this report, I would like to get feedback from experts as well as experienced CLL patients whether it could be fast progression or slow progression?

you will excuse me if I put the silly question?

God bless you!

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Sagarcanada
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6 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

All that can be said based on that scant information showing small changes, along with the fact that your wife's haematology appointment is over 3 months away, is that your wife's CLL is fairly stable.

Neil

Sagarcanada profile image
Sagarcanada in reply to AussieNeil

Dear Neil Thank you very much for your response.

lankisterguy profile image
lankisterguyVolunteer

I would agree with AussieNeil a change from ALC 13 to 19 in 6 months, with a drop to 12 in the middle is likely very slow progression. And doctors don't even start considering doulbling time until ALC is over 30. -

One caution is that ALC is like a wind sock- it only gives a general feel / indication of speed of progression. Many other factors are considered as treatment is getting closer. The night sweats, fatigue, and dropping red blood components could be the pivotal factor in starting treatment, the good CLL experts will keep the entire patient in mind.

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I consider my own CLL as progressing quickly, and going from 30 to 60 or even to 90 in 6 months is what I would expect. In my first progression I was at ALC 247 when the fatigue became burdensome. In a later progression I was only at ALC 150 when the fatigue really impacted my daily lifestyle. I hope your wife does not experience significant B- symptoms for several years.

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You may want to read these Pinned Posts: healthunlocked.com/cllsuppo...

healthunlocked.com/cllsuppo...

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Len

Sagarcanada profile image
Sagarcanada in reply to lankisterguy

lankisterguy Thank you very much for your information.

seelel profile image
seelel

Just a footnote to the other replies:There are other conditions or 'time of life' that can produce night sweats. It may or may not be the CLL causing the symptom.

Sagarcanada profile image
Sagarcanada in reply to seelel

Thanks so much

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